Blog

One of the most rewarding benefits of being a member of Emily’s Entourage is the chance to connect with extraordinary individuals from around the globe. Sometimes we connect with people... Read More

On June 13, 2018, Emily’s Entourage took to New York City for the third annual #EENY event: Generation Next Presents A Night Out With Emily’s Entourage. This year, EENY crossed... Read More

Emily’s Entourage (EE) is thrilled to announce that three research grants have been awarded to an esteemed group of international researchers, amounting to a total of $660,000 to be given... Read More

Meet guest blogger Elizabeth Phillipson-Weiner, the mastermind behind EE’s “sEEcret project.” For fear of divulging key clues, we will keep the intro brief and somewhat cryptic. Elizabeth hails from Lower... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Miriam Figueira, a 30... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Stacy Carmona, a lifelong... Read More

May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If you’ve been around the Entourage... Read More

Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place! Whether you donate in time... Read More

Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands. This grant reflects a new... Read More

Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease.  A disease is considered rare when it affects fewer than 200,000 people worldwide. With... Read More

Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she fell in love with Emily’s... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is our treasured EE... Read More

We are still floating back to earth from an otherworldly, dazzling evening that was the 2017 Evening With Emily’s Entourage! This gala—our sixth—was truly breathtaking. Anthropologie, the official 2017 Decor... Read More

Emily’s Entourage is proud to announce that five research grants were awarded to a dream team of investigators from around the world, amounting to a total of $1.4 Million over two... Read More

In case you haven’t noticed, we’re pretty excited that there are only 5 days separating us from our annual Evening with Emily’s Entourage Gala! We know that many of you... Read More

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia... Read More

  As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,... Read More

Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s... Read More

Wondering where in the world is Emily this week? She can be found in  sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO... Read More

We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for... Read More