Emily's Entourage

07 Jun 2019

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

On May 4, 2019, Emily’s Entourage (EE) stormed Manhattan yet again with the 4th Annual EENY fundraiser. The event was breathtaking (in the best possible way!). The theme was Ultra...

04 Jun 2019

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Emily’s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day...

31 May 2019

Address the Unseen Scars: Mental Health and Cystic Fibrosis

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

29 May 2019

Emily Speaks at Translate Bio’s CF Awareness Month Event

On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided opening remarks to launch the day’s events as...

24 May 2019

Appreciate Every Single Smile: Navigating Life with CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

20 May 2019

EE Awards Over $400,000 to Cystic Fibrosis Research

Emily’s Entourage (EE) is thrilled to announce that two new research grants and one stimulus grant have been awarded to a group of highly respected researchers, amounting to a total...

17 May 2019

The Luckiest Man Alive: Loving a Woman with CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage community to contribute their unique voices to our blog. In honor of May being Cystic...

10 May 2019

Finding Hope in Loss: Becoming a CF Mother

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

03 May 2019

The Flotation Device I Cling To: Living with Nonsense Mutations of CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

01 May 2019

Let’s Get Noisy…May Is CF Awareness Month!

May is Cystic Fibrosis (CF) Awareness Month, and it is a month we take seriously at Emily’s Entourage (EE). We firmly believe that spreading awareness, not only about the disease,...

23 Apr 2019

The 4th Annual EENY: Full Artist Lineup

The 4th Annual EENY: ULTRA VIOLET in NYC is just around the corner on May 4, and Emily’s Entourage (EE) is absolutely thrilled to announce the full lineup of the...

17 Apr 2019

Meet the 2019 EENY Champions!

The Emily’s Entourage (EE) New York Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the mission to cure Cystic Fibrosis (CF). Nominated in recognition...

26 Mar 2019

EE Heads to D.C. for Health Datapalooza 2019

On March 27, Emily’s Entourage (EE) heads to Washington, D.C. to attend Health Datapalooza 2019. Emily, EE co-founder, will participate in the mainstage opening session panel, where she will share...

18 Mar 2019

Emily’s Thoughts on “Five Feet Apart”

“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on the internet. They are asking about the film,...

28 Feb 2019

EE Dares to be Rare: Rare Disease Day 2019

This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily targeted to the general public,...

13 Feb 2019

Fall in LovEE with Emily’s Entourage: Meet EENY 2019 Co-Chairs, Emily & Judah

Our next installment of #FallinLovEE with EE includes a very special announcement: Emily Priebe and Judah Levine, co-founders of the community events company Eesho, will be co-chairing our EENY committee...

07 Jan 2019

Happy 34th Birthday to My Best Friend!

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest blogger is our...

02 Jan 2019

RECAP: The 2018 Evening with Emily’s Entourage

On December 1, 2018 we held our 7th Annual Evening with Emily’s Entourage in East Falls and words cannot express the joy brought on by the remarkable community in attendance....

12 Dec 2018

RECAP: EE Symposium Tackles Key Hurdles and Strategies for Expedited Progress for CF Nonsense Mutations

Emily’s Entourage (EE) held its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, on September 25 at The Wistar Institute in Philadelphia, PA. The singular...

15 Nov 2018

Meet the 2018 Emily’s Entourage Champions!

It’s that time of year again! The Emily’s Entourage 2018 Champions Campaign has been working diligently to reach (and exceed!) their fundraising goal of $1,500 per team by the 7th...

Blog

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Address the Unseen Scars: Mental Health and Cystic Fibrosis

Emily Speaks at Translate Bio’s CF Awareness Month Event

Appreciate Every Single Smile: Navigating Life with CF

EE Awards Over $400,000 to Cystic Fibrosis Research

The Luckiest Man Alive: Loving a Woman with CF

Finding Hope in Loss: Becoming a CF Mother

The Flotation Device I Cling To: Living with Nonsense Mutations of CF

Let’s Get Noisy…May Is CF Awareness Month!

The 4th Annual EENY: Full Artist Lineup

Meet the 2019 EENY Champions!

EE Heads to D.C. for Health Datapalooza 2019

Emily’s Thoughts on “Five Feet Apart”

EE Dares to be Rare: Rare Disease Day 2019

Fall in LovEE with Emily’s Entourage: Meet EENY 2019 Co-Chairs, Emily & Judah

Happy 34th Birthday to My Best Friend!

RECAP: The 2018 Evening with Emily’s Entourage

RECAP: EE Symposium Tackles Key Hurdles and Strategies for Expedited Progress for CF Nonsense Mutations

Meet the 2018 Emily’s Entourage Champions!

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