Blog

For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as a patient with a rare... Read More

We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5, 2015 when Emily’s Entourage —... Read More

It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country who are true trailblazers. We... Read More

Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously are forced to face the... Read More

Nick Dinges, The Go-To Guy for…. Everything EE Over the coming months, we plan to feature a series of blog posts highlighting some of our most integral Emily’s Entourage team... Read More

Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably... Read More

Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those... Read More

In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know... Read More

In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their... Read More

It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a... Read More