Emily's Entourage » Press Releases

13 Jul 2026

The Race for Breakthroughs Starts Here: Join Team EE for the 2026 Philadelphia Marathon Weekend

This November, be a part of turning miles into lifesaving momentum for the final 10% of people with cystic fibrosis still waiting for breakthroughs. Philadelphia, PA—July 13, 2026—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating research and drug development for individuals with cystic fibrosis (CF) who do not benefit from current mutation-targeted therapies, is thrilled to announce that registration is now open...

17 Mar 2026

Emily’s Entourage Appoints David A. Waltz, MD, as First Chief Medical Officer

Veteran cystic fibrosis physician-scientist and former Vertex Pharmaceuticals senior leader to help accelerate therapies for the final 10% of people with cystic fibrosis Philadelphia, PA—March 17, 2026—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating new treatments and a cure for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing CFTR modulator therapies, today announced the appointment...

19 Nov 2025

Batsheva Kerem, PhD, Honored with Inaugural Dr. Carolyn Denning Trailblazer Award by Emily’s Entourage

Recognizing a pioneering force in cystic fibrosis genetics whose research continues to drive hope and breakthroughs for the final 10% of people with CF still waiting for effective therapies. Seattle, Washington—November 19, 2025—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating new treatments and a cure for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing CFTR...

20 Aug 2025

Tickets On Sale Now for Emily’s Entourage 2025 Gala, “High-Res,” Illuminating a Sharpened Vision for Therapeutic Breakthroughs in Cystic Fibrosis

An unforgettable night of bold visuals, immersive storytelling, and breakthrough science—support a powerful mission and experience a future coming into focus for individuals living with cystic fibrosis. PHILADELPHIA, PA–August 20, 2025—What if you could watch a future come into focus—pixel by pixel—until hope is no longer blurry, but vivid and real? That’s the journey guests will experience at Emily’s Entourage’s 2025 gala,...

29 Jul 2025

Emily’s Entourage Awards New Funding to University of Texas at Austin to Advance Breakthrough Gene Editing Therapy for Hard-to-Treat Cystic Fibrosis Mutations

With support from Emily’s Entourage, new retron editor technology aims to restore lung function for the 10% of people with cystic fibrosis unable to benefit from current mutation-targeted therapies. Lower Merion, PA—July 29, 2025—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing CFTR modulator therapies, announced new funding to support...

17 Jul 2025

Emily’s Entourage Awards 2025 Translational Research Grant to Develop New, Highly-Targeted Therapy for Cystic Fibrosis Nonsense Mutations

The newly-funded project seeks to develop a highly targeted treatment to bypass cystic fibrosis nonsense mutations, offering new hope for those still waiting for mutation-targeted therapies. Lower Merion, PA—July 17, 2025—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing CFTR modulator therapies, is proud to announce a 2025 Translational Research...

09 Jul 2025

New Emily’s Entourage Research Grant to Advance Phage Therapy for Drug-Resistant Cystic Fibrosis Infections

Newly-funded San Diego State University project aims to optimize novel bacteriophage-antibiotic treatments for hard-to-treat CF pathogens, which drive disease progression in individuals with CF. Lower Merion, PA—July 9, 2025—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing CFTR modulator therapies, has announced a new 2025 research grant award to Anca...

01 Jul 2025

Run with Heart. Race for Breakthroughs. Join Team EE at the 2025 Philadelphia Marathon Weekend to Support People with Cystic Fibrosis

Join Team EE to turn every mile of the 2025 Philadelphia Marathon Weekend into momentum for lifesaving breakthroughs for those with cystic fibrosis still waiting for a cure. Philadelphia, PA—July 1, 2025—Emily’s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing mutation-targeted therapies, is proud to announce that registration is now...