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Emily’s Story
About Us
About Emily’s Entourage
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Our Impact
2021 Impact Report
2020 Impact Report
2019 Impact Report
About Cystic Fibrosis
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Research
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Press
November 1, 2023
Cystetic Medicines Doses First Person With Cystic Fibrosis In Phase 1 Trial Of Investigational Therapy Cm001, Designed To Form Ion Channels To Help Restore Airway Function
READ MORE
October 18, 2023
Emily’s Entourage finds ‘True North’ with gala to raise money to fight cystic fibrosis
Read More
October 7, 2023
For Most People with Cystic Fibrosis, Life Expectancy Has Increased by a Decade. This Nonprofit is Fighting for Those Left Behind
Read More
September 21, 2023
Three siblings with cystic fibrosis bonded over daily struggles. Then came a breakthrough drug.
READ MORE
June 26, 2023
cystetic Medicines Initiates Phase 1 Clinical Trial of a Molecular Prosthetic for Cystic Fibrosis
READ MORE
February 15, 2023
They were the 10% left out of life-changing treatments. Now these cystic fibrosis patients may finally get help
READ MORE
January 28, 2023
Creating Therapeutic Breakthroughs: A Conversation with Emily Kramer-Golinkoff, Co-Founder of Emily’s Entourage
READ MORE
October 23, 2022
What’s Going On: Vote Early Day, Emily’s Entourage
LISTEN HERE
October 10, 2022
How to Help With Cystic Fibrosis Research
WATCH HERE
March 16, 2022
Patients Not Eligible for Modulator Therapy Speak Out in Survey
READ MORE
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About Emily’s Entourage
Our Approach
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2021 Impact Report
2020 Impact Report
2019 Impact Report
About Cystic Fibrosis
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Scientific Advisory Board
Board of Directors
Leadership Team
Partner Organizations
Research
▼
Areas of Focus
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▼
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Collaborative Grants
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Clinical Trial Matchmaking Program
The Final 10% Survey
Publications
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