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Home
Emily’s Story
About Us
About Emily’s Entourage
Our Approach
Our Impact
2020 Impact Report
2019 Impact Report
About Cystic Fibrosis
Meet Our Leadership
Scientific Advisory Board
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Leadership Team
Partner Organizations
Research
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Publications
For Researchers
Research Grants
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Evening With Emily’s Entourage Gala
Events & Activities
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EE in the News
Press Releases
EE Announces Chandrabali Ghose, PhD, as First-Ever Chief Scientific Officer
EE Hosts 10th Annual Evening With Emily’s Entourage Drive-in Gala, “The Power of 10″
EE Presents “The Magic Line: Drawing A Future Without Cystic Fibrosis”
Spirovant Acquisition
FDA Approval of Trikafta
Awards
Videos
Take action
Donate to Emily’s Entourage
Donate Now
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Press
March 16, 2022
Patients Not Eligible for Modulator Therapy Speak Out in Survey
READ MORE
March 8, 2022
Emily’s Entourage Grant Targets Nonsense Mutations
READ MORE
January 26, 2022
Podcast: Using her voice to fight for her community—and herself
LISTEN HERE
December 1, 2021
You Can Join Emily’s Entourage in Its Fight Against Cystic Fibrosis
WATCH HERE
October 12, 2021
PA Rare Disease Organization Leader Profile: Emily Kramer-Golinkoff
READ MORE
June 29, 2021
Interview with Emily Kramer-Golinkoff of Emily’s Entourage
READ MORE
February 10, 2021
Cystic Fibrosis patients fight for higher spot in coronavirus vaccine line
WATCH HERE
February 4, 2021
Having an underlying health condition doesn’t mean we move up the COVID-19 vaccine line
READ MORE
December 15, 2020
Emily Kramer-Golinkoff talks with Kathy Romano about EE’s virtual campaign to help find a cure for cystic fibrosis
LISTEN HERE
July 29, 2020
Bacteria-eating viruses could provide a route to stability in cystic fibrosis
READ MORE
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EE Hosts 10th Annual Evening With Emily’s Entourage Drive-in Gala, “The Power of 10″
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