Emily's Entourage

30 Jul 2020

Once Upon an Entourage: A Parisian Changemaker Shares Her Story

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Chloé Plissonneau-Duquène,...

10 Jul 2020

Listening Isn’t Nonsense: Becoming Your Own Patient Advocate

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Nicole Kohr,...

29 Jun 2020

Desperation Can Spur Innovation: Recap of EE’s First Virtual Event

As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The Emily’s Entourage (EE) leadership team quickly determined that...

18 May 2020

High Risk During a Pandemic: The CF Community’s Superpower

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

11 May 2020

Mixed Feelings: Living with Rare CF Mutations

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

01 May 2020

All Hands On Deck: It is Cystic Fibrosis Awareness Month

While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May is Cystic Fibrosis (CF) Awareness...

14 Mar 2020

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic Fibrosis. She shares her top...

20 Feb 2020

North American CF Conference 2019: Advances for Nonsense Mutations of CF

Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually by the Cystic Fibrosis Foundation...

13 Feb 2020

CommunitEE Partners: Sweet Stuff Gourmet Candy

Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have transformed into partnerships that have been integral to...

07 Jan 2020

Happy 35th Birthday, Emily!

Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #35for35 campaign and birthday celebration for our dear...

21 Dec 2019

A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

Can we just say…WOW. On Saturday December 7, 2019, Emily’s Entourage (EE) held its 8th Annual Evening with Emily’s Entourage Gala at Moulin at Sherman Mills in East Falls, PA....

22 Nov 2019

Humans of EE: Meet 2019 Philly Gala Honorary Chairs, Kami and Josh Verne

On Fridays, Emily’s Entourage (EE) likes to highlight the remarkable stories and diverse perspectives that make up our expansive, incredible Entourage in the “Humans of EE” series, a riff on...

01 Nov 2019

EE Holds 4th Annual Cocktail Reception at NACFC in Nashville

Emily’s Entourage (EE) is excited to be hosting its 4th Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on November 1, 2019. Emily and her family...

25 Oct 2019

Race for a Cure: Record TeamEE Runners for 26th Philadelphia Marathon Weekend

Emily’s Entourage (EE) is humbled to have such a large support system from the surrounding community. Over the years, countless members of the Entourage have taken matters into their own...

23 Aug 2019

Training for a Cure: CF Researcher Raises Funds for EE

Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations of Cystic Fibrosis (CF). In the next year,...

07 Jun 2019

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

On May 4, 2019, Emily’s Entourage (EE) stormed Manhattan yet again with the 4th Annual EENY fundraiser. The event was breathtaking (in the best possible way!). The theme was Ultra...

04 Jun 2019

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Emily’s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day...

31 May 2019

Address the Unseen Scars: Mental Health and Cystic Fibrosis

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

29 May 2019

Emily Speaks at Translate Bio’s CF Awareness Month Event

On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided opening remarks to launch the day’s events as...

24 May 2019

Appreciate Every Single Smile: Navigating Life with CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

Blog

Once Upon an Entourage: A Parisian Changemaker Shares Her Story

Listening Isn’t Nonsense: Becoming Your Own Patient Advocate

Desperation Can Spur Innovation: Recap of EE’s First Virtual Event

High Risk During a Pandemic: The CF Community’s Superpower

Mixed Feelings: Living with Rare CF Mutations

All Hands On Deck: It is Cystic Fibrosis Awareness Month

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

North American CF Conference 2019: Advances for Nonsense Mutations of CF

CommunitEE Partners: Sweet Stuff Gourmet Candy

Happy 35th Birthday, Emily!

A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

Humans of EE: Meet 2019 Philly Gala Honorary Chairs, Kami and Josh Verne

EE Holds 4th Annual Cocktail Reception at NACFC in Nashville

Race for a Cure: Record TeamEE Runners for 26th Philadelphia Marathon Weekend

Training for a Cure: CF Researcher Raises Funds for EE

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Address the Unseen Scars: Mental Health and Cystic Fibrosis

Emily Speaks at Translate Bio’s CF Awareness Month Event

Appreciate Every Single Smile: Navigating Life with CF

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