By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her superpowers are many. She’s smart, thoughtful, compassionate, forward-thinking,... Read More
Everything (and we mean everything) about the 10th annual Evening with Emily’s Entourage gala, held on Saturday, Dec. 4, 2021, was remarkable. First and foremost, in celebration of our momentous... Read More
Our Emily’s Entourage (EE) Champions program celebrates philanthropic leaders who are helping EE speed lifesaving breakthroughs and a cure for people with nonsense mutations of cystic fibrosis (CF). This year,... Read More
By Jennie, mother of a child with cystic fibrosis As we head into Thanksgiving, I’m looking forward to some much-needed decompression and quality time with my family. But, as the... Read More
By Nicholas Dinges, board member, Emily’s Entourage I’ve known Emily for 25 years now (we went to middle school, high school, and even college together!). But it wasn’t until 7... Read More
By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he finished dressing in his PPE upon entering our... Read More
On Friday, Aug. 27, 2021, those who loved Zack Bassin gathered to play a round of 18 holes — and it was so much more than that. This was their... Read More
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf of the final 10% of... Read More