Blog

With the Covid pandemic putting a halt to in-person fundraising events in 2020, Emily’s Entourage (EE) sought to reinvent its annual campaign in true EE fashion by dreaming big and... Read More

Emily’s Entourage (EE) has never shied away from a challenge. That is to be expected for an organization that is speeding life-saving research and drug development for those with nonsense... Read More

Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #36for36 campaign and birthday celebration for... Read More

Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug development, totaling $790,000 to be given over two... Read More

In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry as a tool for clinical trial patient identification... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Chloé Plissonneau-Duquène,... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Nicole Kohr,... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being... Read More

Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually by the Cystic Fibrosis Foundation... Read More

Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have transformed into partnerships that have been integral to... Read More

On Fridays, Emily’s Entourage (EE) likes to highlight the remarkable stories and diverse perspectives that make up our expansive, incredible Entourage in the “Humans of EE” series, a riff on... Read More

Emily’s Entourage (EE) is excited to be hosting its 4th Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on November 1, 2019. Emily and her family... Read More

Emily’s Entourage (EE) is humbled to have such a large support system from the surrounding community. Over the years, countless members of the Entourage have taken matters into their own... Read More