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  • Home
  • Emily’s Story
  • About Us
    • Our Mission
      • Our Approach
      • Our Impact
        • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    • Signature Events
      • 2020 Year-End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    • EE in the News
    • Press Releases
      • EE Presents First-Ever Virtual Video Premiere Event
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    • Donate to Emily’s Entourage
      • Donate Now
      • Other Ways to Give
    • Get Involved
      • Sign up for Updates
    • Fundraise
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact
  • donate

About Emily’s Entourage

Taking a stand against Cystic Fibrosis

It started as a small-scale fundraiser for a local Cystic Fibrosis stair climb by a group of people who love Emily and are desperate for a CF cure.

It didn’t take long to realize that traditional fundraising efforts could only go so far. To really make an impact, it takes a community of people with a common goal. That’s where Emily’s Entourage comes in.

Emily’s Entourage is made up of people who have had enough of this deadly disease. Join our team as we take a stand against CF. Together, we can make a difference.

Our Mission

Joining the fight against Cystic FibrosisFast Breakthroughs for Cystic Fibrosis 

Emily’s Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.

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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

Tax ID #45-3768161

Emily's Entourage
Website Managed By: Strategic Websites
  • Home
  • Emily’s Story
  • About Us
    ▼
    • Our Mission
    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Presents First-Ever Virtual Video Premiere Event
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    ▼
    • Donate to Emily’s Entourage
      ▼
      • Donate Now
      • Other Ways to Give
    • Get Involved
      ▼
      • Sign Up for Updates
    • Fundraise
      ▼
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact Us