Meet the 2017 Emily’s Entourage Champions

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia and our 18 Champions are working tirelessly to reach (and exceed!) their fundraising goal of $1,500 per team by the annual Evening with Emily’s Entourage Gala on December 2nd. This Champion squad is bigger and better than ever, and they are ready to give CF their best one-two punches! The 2017 team includes high school and college students, husbands and wives, a best friend international duo, and even a seven year old. Collectively, they are crushing goals and the race is on for who will be named the “Emily’s Entourage Philadelphia Champion of the Year”. So let’s get to the main event, and put your hands together, as we officially introduce our 2017 EE Champions. 

2016 Emily’s Entourage Champions who collectively raised over $25,000.

 

 


2017 Emily’s Entourage Champions


ROBERT & PAULA BARG

Fun Fact: “I’m a father of twins.” – Robert / “I have never lost in a watermelon eating competition!” – Paula   

Interests/Hobbies: “I love reading, running, and biking”- Robert/ “Yoga and running”- Paula

Why Robert Got Involved In EE: “I’ve been lucky to know Emily nearly my entire life, but even after all of these years, I’m still in awe of her confidence, her resilience and her charisma. I want to share her story and her message with those who don’t know her yet (which is a dwindling number of people).”

Why Paula Got Involved In EE: “I feel very devoted to ensuring that all individuals (especially the wonderful Emily) deserve the opportunity to live their healthiest and most enjoyable life. My hope is to help everyone who has lived with CF to breathe a little easier.”

DONATE TO ROB & PAULA’S CAMPAIGN


JESSE COHEN

Fun Fact: “One time in college I stayed awake for seven consecutive days (Sunday to Sunday) to finish several research papers due at the end of the semester. One star, do not recommend.”

Interests/Hobbies: “I have lots! Going to concerts and music festivals, social justice, psychology, comedy, sports, TV/Movies, being a good friend and family member.” 

Why Jesse Got Involved In EE: “This year I’ve gotten to a position in my career where I feel like I could realistically raise a significant amount of money, and that’s an opportunity that I’m not willing to waste when the need is so immediate and dire. The poker community has proven itself to be remarkably philanthropic in recent months, and it’s time for me to tap into this resource on behalf of EE.”

DONATE TO JESSE’S CAMPAIGN


JOANNA COHEN

Fun Fact: “New York City (and Hoboken) are my favorite cities in the world!”

Interests/Hobbies: “Spending time with friends and my kids, long walks with my dog coco.”

Why Joanna Got Involved In EE: “I grew up with Emily and have followed along as EE took off over the last few years. As a mother, I feel deeply connected to the struggle that Emily’s family faces every day and I want to do anything I can to help.”

DONATE TO JOANNA’S CAMPAIGN

 

 

 


BEN FIGUEROA

Fun Fact: “I cannot go a day without working, in order for me to stay focused I have to stay busy.”

Interests/Hobbies: “I love writing poetry and being involved in community affairs at school”

Why Ben Got Involved In EE: “I have been so fortunate in my life to be connected to such giving, caring, and change-driven people. I look forward to helping propel a cure for Cystic Fibrosis as a Champion of Emily’s Entourage.”

DONATE TO BEN’S CAMPAIGN

 

 


SARAH GOLDSTEIN 

Fun Fact: “I used to have a pet eel.”

Interests/Hobbies: “I love spending time outdoors, traveling, and spending time with friends and family”

Why Sarah Got Involved In EE: “I have been a volunteer at the Emily’s Entourage Gala the past three years and thought this would be a great opportunity to become more involved in the organization. Especially now, working directly in the hospital with other people affected by CF, I really want to do everything I can to raise money to help find a cure!”

DONATE TO SARAH’S CAMPAIGN

 

 


JESSIE KATZ

Fun Fact: “I recently went to Kenya on a pro bono consulting trip to work with a health-tech start-up company. I am fascinated by the global application of the skillsets I have developed in the states as a strategic planner and am very passionate about the global health/international development field.”

Interests/Hobbies: “I love being outside as often as I can be and love to play sports/run/go on long walks” 

Why Jessie Got Involved In EE: “Ever since getting involved with Emily’s Entourage at Tulane, I have been inspired by the grit, compassion and ambition of the Kramer-Golinkoff family and am fascinated by the research pursuits of Emily’s Entourage. I want to help Emily and others with orphan diseases to find a cure.”

DONATE TO JESSIE’S CAMPAIGN


SAM KRAMER

Coming Soon!

DONATE TO SAM’S CAMPAIGN

 

 

 

 

 

 

 


HAYLEY LEIB

Fun Fact: “I was born in Cape Town, South Africa.”

Interests/Hobbies: “I am a coffee addict (I think I met my match in Emily!). I’ve always had a passion for helping others and for many years worked as a one on one for children with special needs. I also love photography.”

Why Hayley Got Involved In EE: “That’s probably the easiest question to answer. It’s simple. When I met Emily and Liza I simply fell in love with them. As someone living with a chronic, rare disease myself I feel such a strong connection to the cause of EE. I want to do whatever I can to help try and find a cure to help save Emily and others with CF. I feel so incredibly proud to be a part of EE and to be involved with such a special group of people!”

DONATE TO HAYLEY’S CAMPAIGN

 


JESSICA MANCUSO

Fun Fact: “I just moved back to Lower Merion after living in Los Angeles.”

Interests/Hobbies: ” I love playing tennis and acting!

Why Jessica Got Involved In EE: “I started gaining interest in Emily’s Entourage after seeing Emily and her mom Liza work tirelessly at the Starbucks in Bala Cynwyd. From briefly observing them I could tell how much the organization meant (and still means) to them. Additionally, my cousin, Doug Young serves on the EE Board of Directors and good friend, Larry Kaplan travels the world taking pictures for #WhereintheWorldisEE.”

DONATE TO JESSICA’S CAMPAIGN

 


LEAH MARKS

Fun Fact: I can eat a whole watermelon in one sitting!”

Interests/Hobbies: “I love running, and traveling! ”

Why MBA Got Involved In EE: “My Mom, Angela Marks, is heavily involved in EE and serves as the Community Events Chairwoman, so our family is deeply committed to the organization. Now that I am finished with school, I finally have time to fundraise. So even though I won’t be in Philly or the US to fundraise, I am extremely excited about supporting team EE all the way from Australia!

DONATE TO LEAH’S CAMPAIGN

 

 


MBA- NATIONAL HONOR SOCIETY 

Fun Fact: “Our chapter recently attended the Prospanica National Conference at the Philadelphia Convention center. At this conference we mingled with business professionals from all over the world!”

Interests/Hobbies: “We are a group of 23 high school students from inner-city Philadelphia, PA who love music, giving back to our community, traveling, and taking advantage of every opportunity to ensure we have the brightest futures.”

Why MBA Got Involved In EE: “One of our beloved teachers, Marcia DeSalvo, recently left her teaching and leadership role at MBA to become the Marketing and Project Coordinator at Emily’s Entourage. When the opportunity to become a Champion of Emily’s Entourage, our National Honor Society students did not hesitate to accept the nomination. Our students know firsthand about the challenges and difficulties life can often present and that a strong and supportive community can be the difference in changing a life. Like all members of the Entourage, they want to help make a difference for those facing the challenge of CF.”

DONATE TO MBA’S NATIONAL HONOR SOCIETY CAMPAIGN


TED & KENDRA OXHOLM

Fun Fact: “We are expecting our first child in March!”

Interests/Hobbies: “I love playing the banjo when I should be doing the dishes” – Ted/ “I love cooking meals for friends and family”- Kendra

Why Ted and Kendra Got Involved In EE: “I have known Emily since we were in the middle school play together, which it turns out, was far more awkward than I care to remember”- Ted/ “I got to know the foundation and Emily through Ted, and am eager help out the Entourage any way I can”- Kendra

DONATE TO TED & KENDRA’s CAMPAIGN

 

 


CHLOE PLISSONNEAU & EMMA MARTINEZ

Fun Fact: “I was named a “Human of Emily’s Entourage” earlier this year: it was such and honor and privilege! Emma went to the Paralympics last summer, with the organization SOLIDARIO: it was an adventure of a lifetime, and changed her life, as she more than ever realized that life is to be lived 100%!” 

Interests/Hobbies: ” Our favorite is spending hours on the phone together while reinventing the world!”

Why Chloe & Emma Got Involved In EE: “There are so many reasons why! First, we, together, like to defeat our limits: we need to take up to something bigger than ourselves! Also, we want to make the world realize, first how strong-willed we both are, and to show everyone how strong the bonds of friendship can be. Secondly, we’ve accepted the challenge to make the world understand the importance of individual actions: this world desperately seeks actors, not spectators! Also because we believe it is our duty to make this world a better place to live. Last but not least, of course, because we’ve been deeply touched by Emily’s story: it is one that must not and moreover SHOULD NOT leave anyone indifferent! Plus, Liza has always had such kind words for us!”

DONATE TO CHLOE’S & EMMA’S CAMPAIGN


ALEXA SCHWEITZER

Fun Fact: “I will be a fourth generation dentist in my family!”

Interests/Hobbies: “I love cooking and baking, running, and traveling whenever I can!

Why Alexa Got Involved In EE: “I have known people with CF for my entire life, and now have spent lots of time learning about the disease in school as it has many dental manifestations that effect oral health and therefore will affect my patients in the future. I first learned about Emily’s Entourage as a student at Tulane University, where I became friends with Coby and Julia and attended all of the campus EE events. I was immediately inspired by Emily’s story and how incredible this organization and family is. I’ve stayed up-to-date with EE news, and now that I’m in the city where it all started, it’s important to me to share Emily’s story and get my family, friends, and dental network aware of the groundbreaking work of the Entourage.”

DONATE TO ALEXA’S CAMPAIGN


GARRETT SNIDER

Fun Fact: “I have worked with Mission Kids Child Advocacy Center since 2009, beginning as a volunteer and then chairing multiple committees. I have participated in over 100 hours of Darkness to Light training!”

Interests/Hobbies: “I love skiing, traveling, and cooking for loved ones” 

Why Garrett Got Involved In EE: “I started a foundation to protect young people from abuse. But when they’ve already been subjected to the scourge, we try to ignite their tenacity and teach them how to convert their trauma into fuel for the journey. Emily’s story embodies resilience and proves that the spirit prevails. EE transcends the plight of one person and gives hope to countless souls, and mine is one of them.”

DONATE TO GARRETT’S CAMPAIGN


BELLE STARR

Fun Fact: “I take classes in painting and musical theatre and volunteer with my parents. Last year we collected 300 books for kids who didn’t have them.”

Interests/Hobbies: “I like to use my imagination and make the stories come to life by writing my books. I love to sing, dance and especially write.”

Why Belle Got Involved In EE: “I want to be an EE Champion because I don’t want Emily or anyone else to be going through a sickness that stops them from being able to breathe every day. I want to find the medicine for CF and I want it to be purple. I want to cure Cystic Fibrosis.”

DONATE TO BELLE’S CAMPAIGN

 


TOMMY & ELLY WATTS 

Fun Fact: “I jumped out of a perfectly fine airplane and helicopter 47 times in the Army.” – Tommy / “I have family all over the world and am fluent in English, Farsi, German and a little Spanish.” – Elly

Interests/Hobbies: “I coach lacrosse, like going to the gym, using my GoPro, playing video games and spending time with my family”-Tommy/ ” I love photography, traveling, decorating, working out, and spending time with my family”-Elly

Why Tommy & Elly Got Involved In EE: “This hits home for us as our daughter, Soraya, is a carrier of CF.”

DONATE TO TOMMY & ELLY’S CAMPAIGN

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