A Lasting Legacy: The 3rd Annual Zack Bassin Memorial Golf Outing
On Friday, Aug. 27, 2021, those who loved Zack Bassin gathered to play a round of 18 holes — and it was so much more... Read More
GRANTS WE FUND
EE has awarded over $4.8 million to multi-disciplinary teams around the world.
OUR APPROACH
We take an innovative approach to speeding breakthroughs for the final 10% of people with CF — because they cannot wait.
PATIENT REGISTRY
EE maintains a patient registry of individuals with nonsense mutations of CF in an effort to inform them about relevant research, clinical advances, and drug trials.
Stolen Dreams and Freedom: An Adult With CF’s Journey to a Double-Lung Transplant
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf... Read More
Racing Against a Ticking Time Bomb: A Father’s Plea to Speed Breakthroughs for His Child With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf... Read More
Straddling the Line Between the Sick and Well Worlds: A Mother Shares Her Late Daughter’s 25-Year-Long Battle With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf... Read More
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