EE Awards $790,000 in Round 5 Funding for Cystic Fibrosis Research
Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug development, totaling $790,000... Read More
Early Sponsor Opportunity: 2020 Year-End Campaign
Early sponsors who reserve by
September 15, 2020 will be included
in the campaign invitation package!
Unmasked: Cystic Fibrosis in the Times of COVID-19
On July 13, EE released a film to the
public about what life with CF looks
like during the current pandemic.
Mixed Feelings: Living with Rare CF Mutations
Miriam speaks to her experience as
a CF scientist and person with CF
in this featured #CFStrong post.
EE Launches Pilot Patient Registry Collaboration with Translate Bio
In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry as a tool... Read More
Once Upon an Entourage: A Parisian Changemaker Shares Her Story
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
Listening Isn’t Nonsense: Becoming Your Own Patient Advocate
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More