Cystic Fibrosis Patient Database

Emily’s Entourage
CF Clinical Trial Connect

Emily’s Entourage CF Clinical Trial Connect

Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators, including those with:

By joining CF Clinical Trial Connect, you can help accelerate the development of lifesaving therapies for people with CF.

Signing up for CF Clinical Trial Connect is easy.

1 Register today

You’ll be asked to share a few details about yourself and your CF.

2 Get notified

We’ll email you when there’s a trial that may be relevant for you.

3 Take action

Get the information you need to learn more about and participate in the latest clinical trials.

Why register for CF Clinical Trial Connect?

Gain early access to information about clinical trials

Join CF Clinical Trial Connect for early access to the latest, relevant clinical trial opportunities — delivered straight to your inbox.

Advance treatment for 100% of people with CF

Enrolling in a clinical trial helps speed drug development for those left behind by current CFTR modulators.

Be part of the solution

Clinical trial participation is critical to speed drug development for those that do not benefit from CFTR modulators. By joining the CTC, you’re helping to create a future where nobody is left behind.

Who can participate?

The CF Clinical Trial Connect database is open to people with CF from around the world who are unable to benefit from CFTR modulators, including those with:

Ineligible genetic mutations
Side effects from CFTR modulators
Suboptimal response to CFTR modulators

If you are under the age of 18, a parent or guardian can register on your behalf.

How does CF Clinical Trial Connect work?

Joining CF Clinical Trial Connect only takes a few minutes. You will be asked for basic information, including your contact details, demographics, genetic mutation, and microbiology. You can register for yourself, or for an eligible loved one if you are the parent or guardian of a child under 18 years old.

Once you have joined, you will be added to our database. We will contact you about clinical trials that you might qualify for based on the information you provided. You can log in at any time to update your profile and to see current trials that Emily’s Entourage is supporting recruitment for.

CF Clinical Trial Connect also uses aggregated geographical data from registrants to help inform clinical trial site selection.

How are my data and privacy protected?

CF Clinical Trial Connect meets compliance requirements for the communities Emily’s Entourage serves, including General Data Protection Regulation (GDPR) requirements for the United Kingdom and the European Union.

Your data privacy and protection is important to us. Read the privacy policy for CF Clinical Trial Connect.