Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 29, 2024. This week is a... Read More
by Chandra Ghose, PhD, EE’s Chief Scientific Officer In December 2023, Emily’s Entourage (EE) hosted a scientific symposium, The Promise of Gene-Based Therapies for Cystic Fibrosis (CF), at Quorum at... Read More
In December 2021, I was sitting down to lunch with my husband and glued to my phone. I wasn’t scrolling Instagram or TikTok. Instead, I was furiously searching Google Scholar... Read More
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Hi there, Jess here! I’m back again to wish Emily the happiest of birthdays and to share... Read More
by Chandra Ghose, PhD, EE’s Chief Scientific Officer The North American Cystic Fibrosis Conference (NACFC) 2023, held in November in Phoenix, AZ, left the global cystic fibrosis (CF) community with... Read More
We are truly seeing stars! On Saturday, October 14, 2023, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “True North,” and raised a staggering $1.3M — more... Read More
Pulmonary bacterial infections, specifically drug-resistant infections, drive disease progression and mortality in people with cystic fibrosis (CF). Among the worst are non-tuberculosis mycobacterium (NTM) infections, which are often resistant to... Read More
On August 22, 2023, Emily’s Entourage (EE) hosted a virtual town hall meeting that delved into the exciting world of gene-based therapies for cystic fibrosis (CF). This virtual event aimed... Read More