Blog

By Jennie, mother of a child with cystic fibrosis As we head into Thanksgiving, I’m looking forward to some much-needed decompression and quality time with my family. But, as the... Read More

By Nicholas Dinges, board member, Emily’s Entourage I’ve known Emily for 25 years now (we went to middle school, high school, and even college together!). But it wasn’t until 7... Read More

By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he finished dressing in his PPE upon entering our... Read More

On Friday, Aug. 27, 2021, those who loved Zack Bassin gathered to play a round of 18 holes — and it was so much more than that. This was their... Read More

On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf of the final 10% of... Read More

On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf of the final 10% of... Read More

About The Champions The Emily’s Entourage (EE) Champions campaign recognizes philanthropic leaders helping to make a difference in the mission to speed life-saving breakthroughs and a cure for Cystic Fibrosis... Read More

With the Covid pandemic putting a halt to in-person fundraising events in 2020, Emily’s Entourage (EE) sought to reinvent its annual campaign in true EE fashion by dreaming big and... Read More

Emily’s Entourage (EE) has never shied away from a challenge. That is to be expected for an organization that is speeding life-saving research and drug development for those with nonsense... Read More

Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #36for36 campaign and birthday celebration for... Read More

Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug development, totaling $790,000 to be given over two... Read More

In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry as a tool for clinical trial patient identification... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest is Chloé Plissonneau-Duquène,... Read More