Blog

Emily’s Entourage (EE) is thrilled to announce that three research grants have been awarded to an esteemed group of international researchers, amounting to a total of $660,000 to be given... Read More

Meet guest blogger Elizabeth Phillipson-Weiner, the mastermind behind EE’s “sEEcret project.” For fear of divulging key clues, we will keep the intro brief and somewhat cryptic. Elizabeth hails from Lower... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Miriam Figueira, a 30... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Stacy Carmona, a lifelong... Read More

May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If you’ve been around the Entourage... Read More

Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place! Whether you donate in time... Read More

Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands. This grant reflects a new... Read More

Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease.  A disease is considered rare when it affects fewer than 200,000 people worldwide. With... Read More