Emily's Entourage

10 May 2019

Finding Hope in Loss: Becoming a CF Mother

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

03 May 2019

The Flotation Device I Cling To: Living with Nonsense Mutations of CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

01 May 2019

Let’s Get Noisy…May Is CF Awareness Month!

May is Cystic Fibrosis (CF) Awareness Month, and it is a month we take seriously at Emily’s Entourage (EE). We firmly believe that spreading awareness, not only about the disease,...

23 Apr 2019

The 4th Annual EENY: Full Artist Lineup

The 4th Annual EENY: ULTRA VIOLET in NYC is just around the corner on May 4, and Emily’s Entourage (EE) is absolutely thrilled to announce the full lineup of the...

17 Apr 2019

Meet the 2019 EENY Champions!

The Emily’s Entourage (EE) New York Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the mission to cure Cystic Fibrosis (CF). Nominated in recognition...

26 Mar 2019

EE Heads to D.C. for Health Datapalooza 2019

On March 27, Emily’s Entourage (EE) heads to Washington, D.C. to attend Health Datapalooza 2019. Emily, EE co-founder, will participate in the mainstage opening session panel, where she will share...

18 Mar 2019

Emily’s Thoughts on “Five Feet Apart”

“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on the internet. They are asking about the film,...

28 Feb 2019

EE Dares to be Rare: Rare Disease Day 2019

This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily targeted to the general public,...

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