Emily's Entourage

29 Jun 2020

Desperation Can Spur Innovation: Recap of EE’s First Virtual Event

As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The Emily’s Entourage (EE) leadership team quickly determined that...

18 May 2020

High Risk During a Pandemic: The CF Community’s Superpower

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

11 May 2020

Mixed Feelings: Living with Rare CF Mutations

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

04 May 2020

The Only Thing You Have Control Over: Appreciating CF Caregiving

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

01 May 2020

All Hands On Deck: It is Cystic Fibrosis Awareness Month

While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May is Cystic Fibrosis (CF) Awareness...

14 Mar 2020

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic Fibrosis. She shares her top...

20 Feb 2020

North American CF Conference 2019: Advances for Nonsense Mutations of CF

Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually by the Cystic Fibrosis Foundation...

13 Feb 2020

CommunitEE Partners: Sweet Stuff Gourmet Candy

Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have transformed into partnerships that have been integral to...

Blog

Desperation Can Spur Innovation: Recap of EE’s First Virtual Event

High Risk During a Pandemic: The CF Community’s Superpower

Mixed Feelings: Living with Rare CF Mutations

The Only Thing You Have Control Over: Appreciating CF Caregiving

All Hands On Deck: It is Cystic Fibrosis Awareness Month

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

North American CF Conference 2019: Advances for Nonsense Mutations of CF

CommunitEE Partners: Sweet Stuff Gourmet Candy

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