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Blog

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04 May 2020
0

The Only Thing You Have Control Over: Appreciating CF Caregiving

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...
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01 May 2020
0

All Hands On Deck: It is Cystic Fibrosis Awareness Month

While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May is Cystic Fibrosis (CF) Awareness...
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14 Mar 2020
2

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic Fibrosis. She shares her top...
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20 Feb 2020
0

North American CF Conference 2019: Advances for Nonsense Mutations of CF

Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually by the Cystic Fibrosis Foundation...
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13 Feb 2020
0

CommunitEE Partners: Sweet Stuff Gourmet Candy

Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have transformed into partnerships that have been integral to...
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07 Jan 2020
0

Happy 35th Birthday, Emily!

Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #35for35 campaign and birthday celebration for our dear...
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21 Dec 2019
0

A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

Can we just say…WOW. On Saturday December 7, 2019, Emily’s Entourage (EE) held its 8th Annual Evening with Emily’s Entourage Gala at Moulin at Sherman Mills in East Falls, PA....
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22 Nov 2019
0

Humans of EE: Meet 2019 Philly Gala Honorary Chairs, Kami and Josh Verne

On Fridays, Emily’s Entourage (EE) likes to highlight the remarkable stories and diverse perspectives that make up our expansive, incredible Entourage in the “Humans of EE” series, a riff on...
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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • Our Mission
    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    ▼
    • Donate to Emily’s Entourage
      ▼
      • Donate Now
      • Other Ways to Give
    • Get Involved
      ▼
      • Sign Up for Updates
    • Fundraise
      ▼
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact Us