My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Lee mas
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Lee mas
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Lee mas
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Lee mas
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Lee mas
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Lee mas
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Lee mas
Ver hacia delante: Imaginando un futuro sin límites para Emily y los 10% finales
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Lee mas
Carrera hacia la curación: conozca a los corredores del #TeamEE 2025 que impulsan los avances en la fibrosis quística
Dentro de unos días, el 22 y 23 de noviembre de 2025, nuestros inspiradores corredores del #TeamEE participarán en el Maratón de Filadelfia en honor... Lee mas
NACFC 2025: Principales conclusiones para la 10% final
Por Chandra Ghose, doctora y directora científica de Emily's Entourage Desde las neblinosas orillas de Puget Sound hasta las... Lee mas
