Inside EE’s New Research Roadmap for the Final 10%
At Emily’s Entourage’s inaugural State of the Science: EE Edition webinar, we unveiled a bold new Research Roadmap—and shared why years of... Read More
Inside EE’s Newest Research Grants: Tackling the Barriers to CF Breakthroughs
Six newly funded projects are pursuing promising solutions to some of the field’s toughest challenges for the final 10%. Getting gene-editing... Read More
My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Read More
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Read More
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Read More
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Read More
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Read More
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Read More
Seeing Forward: Imagining a Future Without Limits for Emily and the Final 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Read More
