My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Läs mer om
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Läs mer om
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Läs mer om
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Läs mer om
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Läs mer om
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Läs mer om
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Läs mer om
Att se framåt: Att föreställa sig en framtid utan gränser för Emily och den sista 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Läs mer om
Racing Toward a Cure: Möt 2025 #TeamEE-löparna som driver CF-genombrott
Om bara några dagar - den 22 och 23 november 2025 - kommer våra inspirerande #TeamEE-löpare att ta sig an Philadelphia Marathon för att hedra... Läs mer om
NACFC 2025: Viktiga lärdomar inför den sista 10%
Av Chandra Ghose, PhD, Chief Scientific Officer på Emily's Entourage Från de dimmiga stränderna i Puget Sound till de surrande hallarna i ... Läs mer om
