My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Leia mais
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Leia mais
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Leia mais
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Leia mais
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Leia mais
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Leia mais
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Leia mais
Vendo o futuro: Imaginando um Futuro Sem Limites para Emily e os 10% finais
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Leia mais
Correndo em direção à cura: conheça os corredores da #TeamEE de 2025 que estão impulsionando os avanços da FC
Em apenas alguns dias - em 22 e 23 de novembro de 2025 - nossos inspiradores corredores do #TeamEE participarão da Maratona da Filadélfia em homenagem a... Leia mais
NACFC 2025: Principais conclusões para o 10% final
Por Chandra Ghose, PhD, Diretora Científica da Emily's Entourage Das margens enevoadas de Puget Sound aos corredores movimentados de... Leia mais
