Emily's Entourage

08 Aug 2016

Jessica Bean’s “CF Superhero” Interview with Emily

We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give our Entourage a window into...

21 Jul 2016

Top 10 Lessons On Running A Disruptive Foundation

Today’s guest blog post was written by Emily and adapted from a speech delivered at the Global Genes and Penn Orphan Disease Center’s Rare Patient Advocacy Symposium. Like so many...

22 Jun 2016

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Bronwyn Breitner

Bronwyn Breitner, the big and bold thinker of EE This blog post is part of our sEEcret sauce blog series highlighting some of our most integral Emily’s Entourage team members....

31 May 2016

Flying High in the Big Apple: Recap of EE’s First Ever New York Event!

Emily’s Entourage is truly taking off. There’s no stopping us. How do we know? Because we took to New York City for the first time and – fuggedaboutit Brooklyn! – it...

26 May 2016

Emily Speaks at Doctors 2.0 & You in Paris

This week, Emily is so honored to be bringing the best of Emily’s Entourage to the 6th annual Doctors 2.0 & You, Europe’s premier digital health event and Emily’s very...

12 May 2016

Why I Am Dyeing My Hair Purple in May

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s blog contributor is Rebecca Fox Starr,...

09 May 2016

Get Ready… Get Set… May is Cystic Fibrosis Awareness Month!

Emily’s Entourage is pulling out all the stops to celebrate National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE supporter or new to this awesome entourage, please take a...

13 Apr 2016

Getting Into “The Zone” When You’re On A Deadline: Emily’s Tricks for Inspiration

A guest blog post by Emily on her tricks for inspiring writing creativity and productivity when she’s on a deadline. Anyone who knows me and knows my working style has...

22 Mar 2016

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Liza Kramer

Liza Kramer, the Momma Bear of Emily and EE This blog post is part of our sEEcret sauce blog series highlighting some of our most integral Emily’s Entourage team members. The goal...

02 Mar 2016

Emily Speaks at Vertex Pharmaceuticals for Rare Disease Week

For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as a patient with a rare...

24 Jan 2016

Recap of Our 2015 Evening with Emily’s Entourage Gala

We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5, 2015 when Emily’s Entourage —...

18 Jan 2016

Inaugural Emily’s Entourage Champions exceed $30K in funds raised for Cystic Fibrosis!

It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country who are true trailblazers. We...

09 Jan 2016

Happy 31st birthday, Emily!

Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously are forced to face the...

31 Dec 2015

EE’s Top 10 of 2015

2015 was MAJOR. So insanely major that the only way to sum it up was with a gold old top 10 list and an awesome video of highlights at the end. So...

21 Dec 2015

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Nick Dinges

Nick Dinges, The Go-To Guy for…. Everything EE Over the coming months, we plan to feature a series of blog posts highlighting some of our most integral Emily’s Entourage team...

07 Dec 2015

Why do we love hot air balloons?

Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably...

16 Nov 2015

EE’s “meeting of the minds” propels bold new approaches to CF therapeutics

Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those...

14 Nov 2015

So True / So False: A playful myth-busting guide to the Evening with Emily’s Entourage Gala

In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know...

26 Oct 2015

9 Life-Changing Lessons from Stanford Medicine X

A couple weeks ago, I had the privilege of speaking at Stanford Medicine X and serving as an ePatient advisor to a new class of ePatients, individuals who are empowered...

22 Oct 2015

Faces of CF: A Special Anniversary

Here at Emily’s Entourage we are dedicated to bringing you fresh content full of honesty, passion, and information. With excitement, we present the first in a new blog series, “Faces...

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