Emily's Entourage

24 Feb 2017

Humans of EE: Meet Chloé Plissonneau-Duquene!

Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“. Humans of EE highlights the...

23 Jan 2017

Recap: The 2016 Evening with Emily’s Entourage Gala

Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating from the evening of December...

22 Sep 2016

Emily Speaks and Is Honored at Global Genes RARE Patient Advocacy Summit

Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other esteemed rare disease stakeholders at...

05 Sep 2016

How EE Helped Land Me a Job

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is EE superstar Brandon Faske,...

05 Sep 2016

Through the Digital Screen: A Complicated Tale of Friendship in the CF Community

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Mallory Smith, a 23-year-old writer living...

08 Aug 2016

Jessica Bean’s “CF Superhero” Interview with Emily

We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give our Entourage a window into...

21 Jul 2016

Top 10 Lessons On Running A Disruptive Foundation

Today’s guest blog post was written by Emily and adapted from a speech delivered at the Global Genes and Penn Orphan Disease Center’s Rare Patient Advocacy Symposium. Like so many...

22 Jun 2016

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Bronwyn Breitner

Bronwyn Breitner, the big and bold thinker of EE This blog post is part of our sEEcret sauce blog series highlighting some of our most integral Emily’s Entourage team members....

31 May 2016

Flying High in the Big Apple: Recap of EE’s First Ever New York Event!

Emily’s Entourage is truly taking off. There’s no stopping us. How do we know? Because we took to New York City for the first time and – fuggedaboutit Brooklyn! – it...

26 May 2016

Emily Speaks at Doctors 2.0 & You in Paris

This week, Emily is so honored to be bringing the best of Emily’s Entourage to the 6th annual Doctors 2.0 & You, Europe’s premier digital health event and Emily’s very...

12 May 2016

Why I Am Dyeing My Hair Purple in May

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s blog contributor is Rebecca Fox Starr,...

09 May 2016

Get Ready… Get Set… May is Cystic Fibrosis Awareness Month!

Emily’s Entourage is pulling out all the stops to celebrate National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE supporter or new to this awesome entourage, please take a...

13 Apr 2016

Getting Into “The Zone” When You’re On A Deadline: Emily’s Tricks for Inspiration

A guest blog post by Emily on her tricks for inspiring writing creativity and productivity when she’s on a deadline. Anyone who knows me and knows my working style has...

22 Mar 2016

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Liza Kramer

Liza Kramer, the Momma Bear of Emily and EE This blog post is part of our sEEcret sauce blog series highlighting some of our most integral Emily’s Entourage team members. The goal...

02 Mar 2016

Emily Speaks at Vertex Pharmaceuticals for Rare Disease Week

For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as a patient with a rare...

24 Jan 2016

Recap of Our 2015 Evening with Emily’s Entourage Gala

We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5, 2015 when Emily’s Entourage —...

18 Jan 2016

Inaugural Emily’s Entourage Champions exceed $30K in funds raised for Cystic Fibrosis!

It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country who are true trailblazers. We...

09 Jan 2016

Happy 31st birthday, Emily!

Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously are forced to face the...

31 Dec 2015

EE’s Top 10 of 2015

2015 was MAJOR. So insanely major that the only way to sum it up was with a gold old top 10 list and an awesome video of highlights at the end. So...

21 Dec 2015

sEEcret sauce: EE’s Ingredients for Success – Spotlight on Nick Dinges

Nick Dinges, The Go-To Guy for…. Everything EE Over the coming months, we plan to feature a series of blog posts highlighting some of our most integral Emily’s Entourage team...

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