The Race for Breakthroughs Starts Here: Join Team EE for the 2026 Philadelphia Marathon Weekend
This November, be a part of turning miles into lifesaving momentum for the final 10% of people with cystic fibrosis still waiting... Lee mas
My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Lee mas
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Lee mas
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Lee mas
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Lee mas
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Lee mas
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Lee mas
Líneas de progreso: Mi viaje de la enfermedad crítica a la defensa del cambio
Durante el Mes de Concienciación sobre la FQ, El Séquito de Emily invita a los miembros de la comunidad de fibrosis quística (FQ) a compartir sus historias. La entrada del blog de hoy destaca... Lee mas
Líneas de conexión, caminos hacia el progreso: En este Mes de Concienciación sobre la FQ, es hora de #CrossOutCF
El Mes de Sensibilización sobre la Fibrosis Quística 2025 ya está aquí, y en Emily's Entourage (EE) celebramos el espíritu inquebrantable de la... Lee mas
La Coalición de Medicina Personalizada concede al cofundador de Emily's Entourage el Premio 2024 al Liderazgo en Medicina Personalizada
Emily Kramer-Golinkoff, enferma de fibrosis quística y cofundadora de Emily's Entourage, es la ganadora del Premio al Liderazgo en... Lee mas
