The Race for Breakthroughs Starts Here: Join Team EE for the 2026 Philadelphia Marathon Weekend
This November, be a part of turning miles into lifesaving momentum for the final 10% of people with cystic fibrosis still waiting... Ler mais
My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Ler mais
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Ler mais
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Ler mais
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Ler mais
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Ler mais
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Ler mais
Linhas de progresso: A minha viagem desde a doença grave até à defesa de causas que geram mudanças
Durante o Mês da Sensibilização para a FC, a Emily's Entourage convida os membros da comunidade da fibrose quística (FC) a partilharem as suas histórias. A publicação de hoje no blogue destaca... Ler mais
Linhas de ligação, caminhos para o progresso: Neste mês de sensibilização para a FC, é altura de #CrossOutCF
O Mês da Sensibilização para a Fibrose Quística 2025 chegou e, na Emily's Entourage (EE), estamos a celebrar o espírito inabalável da fibrose quística (FC)... Ler mais
Cofundador da Emily's Entourage premiado com o Prémio de Liderança em Medicina Personalizada 2024 pela Coligação de Medicina Personalizada
Emily Kramer-Golinkoff, uma pessoa com fibrose cística e co-fundadora da Emily's Entourage, é a vencedora do Prémio de Liderança em... Ler mais
