Emily's Entourage » cf awareness

The Race for Breakthroughs Starts Here: Join Team EE for the 2026 Philadelphia Marathon Weekend

13 יול 2026

This November, be a part of turning miles into lifesaving momentum for the final 10% of people with cystic fibrosis still waiting...

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My Nephew Has CF in Iraq. Here’s What People Don’t See.

28 מאי 2026

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features...

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A Life That’s Worth Being Seen

30 אפר 2026

During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,...

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The Quiet Weight of Living with CF

30 אפר 2026

During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey...

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Survival is Never a Solo Act

30 אפר 2026

During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber...

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I Was Rare Among Rare—Until I Wasn’t

22 פבר 2026

During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights...

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