Glitter and Grit: Finding Hope Through Art and Cystic Fibrosis
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s post features Dylan... Lee mas
CF Before Birth: How One Couple Used Modulators for In Utero Treatment to Improve Health Outcomes for Their Child
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Chris and... Lee mas
Lines of Progress: My Journey from Critical Illness to Change-Making Advocacy
Durante el Mes de Concienciación sobre la FQ, El Séquito de Emily invita a los miembros de la comunidad de fibrosis quística (FQ) a compartir sus historias. La entrada del blog de hoy destaca... Lee mas
The CF Brother Who Became a CF Scientist
Durante el Mes de Concienciación sobre la FQ, El Séquito de Emily invita a los miembros de la comunidad de fibrosis quística (FQ) a compartir sus historias. La entrada del blog de hoy destaca... Lee mas
Lines of Connection, Paths to Progress: This CF Awareness Month, It’s Time to #CrossOutCF
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF)... Lee mas
The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough... Lee mas
Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape... Lee mas
What’s the best that could happen?
By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone!... Lee mas
Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and... Lee mas
Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs
In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and... Lee mas
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