Emily's Entourage

07 Dec 2015

Why do we love hot air balloons?

Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably...

16 Nov 2015

EE’s “meeting of the minds” propels bold new approaches to CF therapeutics

Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those...

14 Nov 2015

So True / So False: A playful myth-busting guide to the Evening with Emily’s Entourage Gala

In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know...

26 Oct 2015

9 Life-Changing Lessons from Stanford Medicine X

A couple weeks ago, I had the privilege of speaking at Stanford Medicine X and serving as an ePatient advisor to a new class of ePatients, individuals who are empowered...

22 Oct 2015

Faces of CF: A Special Anniversary

Here at Emily’s Entourage we are dedicated to bringing you fresh content full of honesty, passion, and information. With excitement, we present the first in a new blog series, “Faces...

13 Oct 2015

Emily’s Entourage to Take-Over 2015 Philadelphia Marathon for Second Year

In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their...

05 Oct 2015

Vote Emily for Philly’s Health Hero

Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –...

30 Sep 2015

Announcing our Emily’s Entourage Champions Campaign!

It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a...

21 Sep 2015

Emily Returns To Stanford Medicine X as Speaker and Advisor

This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but...

30 Aug 2015

An Inspired Poem

Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the...

27 Jul 2015

6 Tips for Standing Back Up After Being Knocked Down

The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking...

13 Jul 2015

Emily Honored as White House “Champion of Change”

Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White...

25 Jun 2015

#FactFriday

After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share...

18 May 2015

Just For A Day: An Inside Look At Emily’s Life With CF

Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also...

10 May 2015

A Mother’s Perspective: Celebrating Mother’s Day with Emily’s Mom

Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some...

07 May 2015

EE Board Member Spotlight: Heather Braver

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

05 May 2015

EE Board Member Spotlight: Rachael Packer

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

04 May 2015

Emily’s Entourage Embraces New Leadership

Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was...

29 Apr 2015

Make Some Noise: May is Cystic Fibrosis Awareness Month!

Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to...

13 Apr 2015

EE’s Big Easy Bash: Tulane Students Fighting for a Cure

Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so...

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