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Blog

15 Jul 2014

George Washington University Blog Features Emily’s Entourage TEDMED Great Challenges Discussion

Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important...
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27 May 2014

EE Reflects on the Past…and Looks to the Future…

As another successful CF Awareness Month comes to a close, all of us at Emily’s Entourage are taking a moment to reflect on how far we’ve come…… When we pressed...
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19 May 2014

Emily’s “Bucket List” of Life Dreams

In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s one thing I’ve learned, it’s that uncertainty is...
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30 Apr 2014

May is Cystic Fibrosis Awareness Month: Spread the Word

Emily’s Entourage is proud to participate in recognizing the month of May as National CF Awareness Month. This is a great time for EE to work alongside the CF community...
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30 Apr 2014

Emily Answers 24 Questions About Life and CF

Emily’s Entourage is pleased to have this month as an opportunity to shine the light on CF and on our efforts to combat this devastating disease. An awareness month is...
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20 Apr 2014

EE Spotlight on: Nickie Boston

Today, we are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. The goal of the “Spotlight Series” is...
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08 Apr 2014

THE Emily of Emily’s Entourage Speaks at Tulane University

SPOTTED: THE Emily, of Emily’s Entourage, motivating a room full of 100+ Tulane students to get out and make a difference by choosing a path of action in their lives....
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26 Mar 2014

Emily’s Tips for Cultivating Super-Patients

When it comes to managing life with a chronic illness, taking all your medications and following your treatment regimen isn’t as simple as you might think. In fact, it’s often...
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23 Feb 2014

Lobs of Love: A ladies round robin doubles tournament to benefit Emily’s Entourage

On Tuesday, February 4th, we were delighted to cheer on 28 fabulous women as they demonstrated their best serves, forehands and backhands for a great cause. They participated in a...
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29 Jan 2014

Emily speaks about Jewish Genetic Diseases at Har Zion Temple

On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and Decisions.” The discussions covered hereditary...
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22 Jan 2014

Fabulous February Events for Emily’s Entourage

February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars and join us for the...
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08 Jan 2014

#Throwback Thursday: Some of our favorite memories with Emily!

Hello everyone! It’s Jess here, and I wanted to ask you to join me and all of EE in wishing Emily a VERY happy birthday!!! For Throwback Thursday, we wanted...
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16 Dec 2013

An Evening with Emily’s Entourage: A Recap

Our second annual “Evening with Emily’s Entourage” was hosted on December 7th and we cannot begin to put into words how magical it was.  We want to start by thanking...
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02 Dec 2013

Join EE in celebrating #GivingTuesday!

An entourage forms a community of support around a certain person. Our person is Emily, and our entourage is making moves to redefine what it means to be a person...
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20 Nov 2013

EExtraordinary Donors: Why I support Emily’s Entourage

Emily’s Entourage has the most generous, thoughtful and dedicated donors! To show our gratitude, we want to shine the spotlight on YOU, the incredible entourage members. In this blog series,...
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29 Oct 2013

Top 5 Things You (Probably) Don’t Know About Cystic Fibrosis

Emily of Emily’s Entourage shares interesting tidbits and lesser-known facts about life with Cystic Fibrosis (CF). 1. People with CF can’t be together. The thick, sticky mucus that builds up...
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15 Oct 2013

Top 7 Most Meaningful Moments at Stanford’s Medicine X Conference

Emily of Emily’s Entourage highlights the most impactful parts of her experience as an ePatient at Stanford’s Medicine X Conference. The Stanford Medicine X Conference was a whirlwind, to put...
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23 Sep 2013

Emily is Featured Speaker at Stanford’s Medicine X Conference Sept 28 [VIDEO]

Heads up everyone! Emily’s thrilled to be a featured “ignite” speaker at Stanford School of Medicine’s influential Medicine X conference on September 28, 2013. Emily’s talk, “The Networked Patient: A Collaborative...
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11 Sep 2013

A Look Inside: The Tulane EE Chapter

Brandon Faske, a senior at Tulane University and co-president of the Tulane Emily’s Entourage chapter, discusses the exciting activities and fundraising efforts planned for the 2013-2014 school year and why...
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12 Aug 2013

Guest Blog Post: Why Tori is bringing Emily’s Entourage to her college campus

We’re so happy to bring you a special guest blog post from Tori Levin, a committed member of the Entourage, who attended the first-ever Emily’s Entourage college meeting on August...
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
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    • Events & Activities
  • Press & Media
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    • EE in the News
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