Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important... Read More
As another successful CF Awareness Month comes to a close, all of us at Emily’s Entourage are taking a moment to reflect on how far we’ve come…… When we pressed... Read More
In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s one thing I’ve learned, it’s that uncertainty is... Read More
Emily’s Entourage is proud to participate in recognizing the month of May as National CF Awareness Month. This is a great time for EE to work alongside the CF community... Read More
Emily’s Entourage is pleased to have this month as an opportunity to shine the light on CF and on our efforts to combat this devastating disease. An awareness month is... Read More
Today, we are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. The goal of the “Spotlight Series” is... Read More
SPOTTED: THE Emily, of Emily’s Entourage, motivating a room full of 100+ Tulane students to get out and make a difference by choosing a path of action in their lives.... Read More
When it comes to managing life with a chronic illness, taking all your medications and following your treatment regimen isn’t as simple as you might think. In fact, it’s often... Read More
On Tuesday, February 4th, we were delighted to cheer on 28 fabulous women as they demonstrated their best serves, forehands and backhands for a great cause. They participated in a... Read More
On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and Decisions.” The discussions covered hereditary... Read More
February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars and join us for the... Read More
Hello everyone! It’s Jess here, and I wanted to ask you to join me and all of EE in wishing Emily a VERY happy birthday!!! For Throwback Thursday, we wanted... Read More
Our second annual “Evening with Emily’s Entourage” was hosted on December 7th and we cannot begin to put into words how magical it was. We want to start by thanking... Read More
An entourage forms a community of support around a certain person. Our person is Emily, and our entourage is making moves to redefine what it means to be a person... Read More
Emily’s Entourage has the most generous, thoughtful and dedicated donors! To show our gratitude, we want to shine the spotlight on YOU, the incredible entourage members. In this blog series,... Read More
Emily of Emily’s Entourage shares interesting tidbits and lesser-known facts about life with Cystic Fibrosis (CF). 1. People with CF can’t be together. The thick, sticky mucus that builds up... Read More
Emily of Emily’s Entourage highlights the most impactful parts of her experience as an ePatient at Stanford’s Medicine X Conference. The Stanford Medicine X Conference was a whirlwind, to put... Read More
Heads up everyone! Emily’s thrilled to be a featured “ignite” speaker at Stanford School of Medicine’s influential Medicine X conference on September 28, 2013. Emily’s talk, “The Networked Patient: A Collaborative... Read More
Brandon Faske, a senior at Tulane University and co-president of the Tulane Emily’s Entourage chapter, discusses the exciting activities and fundraising efforts planned for the 2013-2014 school year and why... Read More
We’re so happy to bring you a special guest blog post from Tori Levin, a committed member of the Entourage, who attended the first-ever Emily’s Entourage college meeting on August... Read More