Blog

May is an important time of the year for us at Emily’s Entourage (EE). It marks Cystic Fibrosis (CF) Awareness Month, a time for the community to band together to... Read More

At Emily’s Entourage (EE), we realize that what drives disease progression and mortality in people with cystic fibrosis (CF) — and what threatens their ability to wait for transformative therapies... Read More

Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 28. It is a time for... Read More

Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate EE’s achievements to date, recognize and honor the... Read More

By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Being a parent to two young children means that each day I complete approximately 750 small tasks,... Read More

We learned a long time ago that the people who power Emily’s Entourage (EE) are the strongest and most tenacious group of humans in the entire world. Nowhere is that... Read More

Talk about a night to remember! On Thursday, Oct. 13, 2022, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “The Flight of the Monarch,” at The Mann... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Jason DeMott, the parent of a child... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Anna Payne, an adult with CF. Did... Read More

During CF Awareness Month, Emily’s Entourage (EE) invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Ella Balasa, a patient advocate and... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Abhijit Tirumala, an adult with CF. Even... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Emily Wasserman, a sibling of an adult... Read More

May is Cystic Fibrosis (CF) Awareness Month, a time for the entire CF community to come together to advocate, spread awareness, share personal stories, and unite behind the mission of... Read More

On April 6, 2022, Emily’s Entourage (EE) presented an informational webinar to share the findings of its inaugural global survey on the health and perspectives of people with cystic fibrosis... Read More

In February 2022, we announced that Emily’s Entourage (EE) awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and drug development. Today, we are thrilled... Read More

Emily’s Entourage (EE) is pleased to announce that its first-ever, global survey on the health and perspectives of people with cystic fibrosis (CF) that do not benefit from approved mutation-targeted... Read More

We are thrilled to share that Emily’s Entourage (EE) has awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and drug development. The grants support... Read More

Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical awareness for rare diseases. It is a time... Read More

By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her superpowers are many. She’s smart, thoughtful, compassionate, forward-thinking,... Read More