During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Anna Payne, an adult with CF. Did... Read More
During CF Awareness Month, Emily’s Entourage (EE) invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Ella Balasa, a patient advocate and... Read More
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Abhijit Tirumala, an adult with CF. Even... Read More
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Emily Wasserman, a sibling of an adult... Read More
May is Cystic Fibrosis (CF) Awareness Month, a time for the entire CF community to come together to advocate, spread awareness, share personal stories, and unite behind the mission of... Read More
On April 6, 2022, Emily’s Entourage (EE) presented an informational webinar to share the findings of its inaugural global survey on the health and perspectives of people with cystic fibrosis... Read More
In February 2022, we announced that Emily’s Entourage (EE) awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and drug development. Today, we are thrilled... Read More
Emily’s Entourage (EE) is pleased to announce that its first-ever, global survey on the health and perspectives of people with cystic fibrosis (CF) that do not benefit from approved mutation-targeted... Read More
We are thrilled to share that Emily’s Entourage (EE) has awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and drug development. The grants support... Read More
Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical awareness for rare diseases. It is a time... Read More
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We caught up with Chandra to learn more about... Read More
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her superpowers are many. She’s smart, thoughtful, compassionate, forward-thinking,... Read More
Everything (and we mean everything) about the 10th annual Evening with Emily’s Entourage gala, held on Saturday, Dec. 4, 2021, was remarkable. First and foremost, in celebration of our momentous... Read More
Our Emily’s Entourage (EE) Champions program celebrates philanthropic leaders who are helping EE speed lifesaving breakthroughs and a cure for people with nonsense mutations of cystic fibrosis (CF). This year,... Read More
By Jennie, mother of a child with cystic fibrosis As we head into Thanksgiving, I’m looking forward to some much-needed decompression and quality time with my family. But, as the... Read More
By Nicholas Dinges, board member, Emily’s Entourage I’ve known Emily for 25 years now (we went to middle school, high school, and even college together!). But it wasn’t until 7... Read More
By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he finished dressing in his PPE upon entering our... Read More
On Friday, Aug. 27, 2021, those who loved Zack Bassin gathered to play a round of 18 holes — and it was so much more than that. This was their... Read More
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf of the final 10% of... Read More
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to advocate on behalf of the final 10% of... Read More