My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features... Ler mais
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Ler mais
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Ler mais
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Ler mais
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Ler mais
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Ler mais
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Ler mais
Ver o futuro: Imaginando um futuro sem limites para Emily e os 10% finais
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Ler mais
Corrida para a cura: conheça os corredores da #TeamEE de 2025 que estão a impulsionar os avanços da FC
Dentro de poucos dias - a 22 e 23 de novembro de 2025 - os nossos inspiradores corredores #TeamEE vão participar na Maratona de Filadélfia em honra de... Ler mais
NACFC 2025: Principais conclusões para o 10% final
Por Chandra Ghose, doutorada, Diretora Científica da Emily's Entourage Desde as margens enevoadas de Puget Sound até aos corredores movimentados de... Ler mais
