My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features Zahraa Ammar, a... Ler mais
SUBVENÇÕES QUE FINANCIAMOS
A EE atribuiu milhões de dólares a equipas multidisciplinares de todo o mundo para fazer avançar a investigação e o desenvolvimento de medicamentos para o último 10% das pessoas com FC.
2026 EE GALA
On October 22, 2026, join us for the Evening with Emily’s Entourage at a stunning new indoor venue as we create the precise conditions to incubate new approaches and accelerate lifesaving progress for the final 10%.
BASE DE DADOS DE DOENTES
A Emily's Entourage CF Clinical Trial Connect (CTC) é a única base de dados global de doentes exclusivamente para pessoas com FC que não podem beneficiar dos moduladores CFTR. Ao aderir, pode ajudar a acelerar o desenvolvimento de novas terapias para a FC que salvam vidas.
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema, who reflects on... Ler mais
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey Borgioni, a father,... Ler mais
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber Takayama, who shares... Ler mais