A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Per saperne di più
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Per saperne di più
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Per saperne di più
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Per saperne di più
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Per saperne di più
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Per saperne di più
Vedere avanti: Immaginare un futuro senza limiti per Emily e la Finale 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Per saperne di più
Correre verso la cura: ecco i 2025 corridori dell'#TeamEE che alimentano le scoperte sulla FC
Tra pochi giorni, il 22 e 23 novembre 2025, i nostri ispirati corridori dell'#TeamEE affronteranno la maratona di Philadelphia in onore... Per saperne di più
NACFC 2025: Principali risultati per la finale 10%
Di Chandra Ghose, PhD, Chief Scientific Officer di Emily's Entourage Dalle rive nebbiose del Puget Sound ai corridoi ronzanti di... Per saperne di più
Mettere a fuoco la missione: Una serata di chiarezza e progresso al 2025 Emily's Entourage Gala
Sabato 11 ottobre 2025, i sostenitori di Emily's Entourage si sono riuniti per il Gala 2025 con Emily's Entourage, “High-Res”, una serata... Per saperne di più
