My Nephew Has CF in Iraq. Here’s What People Don’t See.
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features Zahraa Ammar, a... Per saperne di più
I SUSSIDI CHE FINANZIAMO
EE ha assegnato milioni di dollari a gruppi multidisciplinari in tutto il mondo per far progredire la ricerca e lo sviluppo di farmaci per il 10% finale delle persone affette da FC.
2026 EE GALA
On October 22, 2026, join us for the Evening with Emily’s Entourage at a stunning new indoor venue as we create the precise conditions to incubate new approaches and accelerate lifesaving progress for the final 10%.
DATABASE DEI PAZIENTI
Emily's Entourage CF Clinical Trial Connect (CTC) è l'unico database globale di pazienti dedicato esclusivamente alle persone con FC che non possono beneficiare dei modulatori CFTR. Iscrivendosi, si può contribuire ad accelerare lo sviluppo di nuove terapie salvavita per la FC.
A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema, who reflects on... Per saperne di più
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey Borgioni, a father,... Per saperne di più
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber Takayama, who shares... Per saperne di più