A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Mehr lesen
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Mehr lesen
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Mehr lesen
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Mehr lesen
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Mehr lesen
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Mehr lesen
Seeing Forward: Imagining a Future Without Limits for Emily and the Final 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Mehr lesen
Rennen auf dem Weg zur Heilung: Treffen Sie die 2025 #TeamEE-Läufer, die CF-Durchbrüche vorantreiben
In nur wenigen Tagen - am 22. und 23. November 2025 - werden unsere inspirierenden #TeamEE-Läufer den Philadelphia-Marathon zu Ehren des... Mehr lesen
NACFC 2025: Die wichtigsten Erkenntnisse für das Finale 10%
Von Chandra Ghose, PhD, Chief Scientific Officer bei Emily's Entourage Von den nebligen Ufern des Puget Sound bis zu den geschäftigen Hallen der... Mehr lesen
Die Mission in den Fokus rücken: Ein Abend der Klarheit und des Fortschritts auf der Emily's Entourage Gala 2025
Am Samstag, den 11. Oktober 2025, versammelten sich die Unterstützer von Emily's Entourage zur 2025 Evening with Emily's Entourage Gala, “High-Res”, einem Abend... Mehr lesen
