Stolen Dreams and Freedom: An Adult With CF’s Journey to a Double-Lung Transplant
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Racing Against a Ticking Time Bomb: A Father’s Plea to Speed Breakthroughs for His Child With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Straddling the Line Between the Sick and Well Worlds: A Mother Shares Her Late Daughter’s 25-Year-Long Battle With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Recap: FDA Listening Session for the Final 10% of People With Cystic Fibrosis, Hosted by Emily’s Entourage
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Drawing a Future Without CF: Recap of EENY’s 2021 Virtual Event
With the world is still in the throes of a global pandemic and in-person gatherings, while starting to take hold, still not... Read More
Living My Dream — With CF
We are honored to share voices from the Cystic Fibrosis (CF) community as part of our blog series for CF Awareness Month.... Read More
Meet the 2021 EENY Champions
About The Champions The Emily’s Entourage (EE) Champions campaign recognizes philanthropic leaders helping to make a difference in the mission to speed... Read More
Education and Community: Lifelines for Living with CF
We are honored to share voices from the Cystic Fibrosis (CF) community as part of our blog series for CF Awareness Month.... Read More
GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a... Read More
EE Rare Disease Week 2021: “Rare is Everywhere”
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to... Read More
