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Category

Blog

A Life Without Worry

13 May 2022
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is...
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My Brave Resilient Sister: A Sibling Perspective of CF

06 May 2022
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is...
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CF Awareness Month: Putting an End to CF Once and For All

01 May 2022
May is Cystic Fibrosis (CF) Awareness Month, a time for the entire CF community to come together to advocate, spread awareness, share...
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Webinar Recap: Key Findings From EE’s “Final 10%” Survey

28 Apr 2022
On April 6, 2022, Emily’s Entourage (EE) presented an informational webinar to share the findings of its inaugural global survey on the...
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EE Announces $178,882 in Funding for Cystic Fibrosis Research

25 Apr 2022
In February 2022, we announced that Emily’s Entourage (EE) awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF)...
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EE Publishes First-Ever “Final 10% Survey” and Announces Informational Webinar

08 Mar 2022
Emily’s Entourage (EE) is pleased to announce that its first-ever, global survey on the health and perspectives of people with cystic fibrosis...
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EE Awards $440,000 in Round 6 Funding for Cystic Fibrosis Research

28 Feb 2022
We are thrilled to share that Emily’s Entourage (EE) has awarded $440,000 in funding for two new grants to advance cystic fibrosis...
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EE Launches “Dare to be Rare” Campaign for Rare Disease Week

22 Feb 2022
Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical...
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Q&A with EE’s First-Ever Chief Scientific Officer, Dr. Chandra Ghose

10 Feb 2022
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We...
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Harnessing Our Superpower

04 Jan 2022
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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