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Category

Blog

More Than Miles: Meet our 2026 #TeamEE Philly Marathon Runners

13 Nov 2026
Every race has a starting line and a finish line. But for the runners representing Emily’s Entourage (EE) during the 2026 Philadelphia...
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NACFC 2026 Recap: Genetic Medicine Takes Center Stage

10 Nov 2026
From first-of-its-kind personalized gene editing to advances in lung delivery, this year’s North American Cystic Fibrosis Conference (NACFC) offered a closer look...
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“Our Journey Is Not Yet Complete”: A Q&A with EE’s First-Ever Chief Medical Officer, David Waltz, MD

03 Nov 2026
For more than three decades, David Waltz, MD, has been working toward a singular goal: developing better treatments for people with cystic...
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Inside EE’s New Research Roadmap for the Final 10%

17 Sep 2026
At Emily’s Entourage’s inaugural State of the Science: EE Edition webinar, we unveiled a bold new Research Roadmap—and shared why years of...
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Inside EE’s Newest Research Grants: Tackling the Barriers to CF Breakthroughs

09 Sep 2026
Six newly funded projects are pursuing promising solutions to some of the field’s toughest challenges for the final 10%.   Getting gene-editing...
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My Nephew Has CF in Iraq. Here’s What People Don’t See.

28 May 2026
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post features...
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A Life That’s Worth Being Seen

30 Apr 2026
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,...
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The Quiet Weight of Living with CF

30 Apr 2026
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey...
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Survival is Never a Solo Act

30 Apr 2026
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber...
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CF, Unseen: A New Perspective for CF Awareness Month

30 Apr 2026
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    • About Emily’s Entourage
    • Our Impact
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      • Research Inquiries
      • Research Resources
  • Events
    • Events & Activities
    • 2026 EE Gala
  • Press & Media
    • EE in the News
    • Press Releases
    • Videos
  • Take action
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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