A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Read More
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Read More
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Read More
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Read More
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Read More
Seeing Forward: Imagining a Future Without Limits for Emily and the Final 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Read More
Racing Toward a Cure: Meet the 2025 #TeamEE Runners Fueling CF Breakthroughs
In just a few days—on November 22 and 23, 2025—our inspiring #TeamEE runners will take on the Philadelphia Marathon in honor of... Read More
NACFC 2025: Key Takeaways for the Final 10%
By Chandra Ghose, PhD, Chief Scientific Officer at Emily’s Entourage From the misty shores of Puget Sound to the buzzing halls of... Read More
Bringing the Mission into High-Res Focus: A Night of Clarity and Progress at the 2025 Emily’s Entourage Gala
On Saturday, October 11, 2025, supporters of Emily’s Entourage gathered for the 2025 Evening with Emily’s Entourage Gala, “High-Res,” a night... Read More
