The Gift of Aging: Happy 36th Birthday, Emily!
Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially... Read More
EE Awards $790,000 in Round 5 Funding for Cystic Fibrosis Research
Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug... Read More
EE Launches Pilot Patient Registry Collaboration with Translate Bio
In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry... Read More
Once Upon an Entourage: A Parisian Changemaker Shares Her Story
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Listening Isn’t Nonsense: Becoming Your Own Patient Advocate
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The... Read More
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices... Read More
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know... Read More
Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a... Read More
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