Bringing the Mission into High-Res Focus: A Night of Clarity and Progress at the 2025 Emily’s Entourage Gala
On Saturday, October 11, 2025, supporters of Emily’s Entourage gathered for the 2025 Evening with Emily’s Entourage Gala, “High-Res,” a night... Read More
Genetic Therapies for the Final 10%: What’s Coming Into Focus
For years, the potential for development of genetic therapy has been a source of cautious hope for the cystic fibrosis (CF) community—especially... Read More
Advancing CF Science: Emily’s Entourage Announces New 2025 Research Grants
EE Awards Research Grants to Fuel Innovation for the Final 10% Emily’s Entourage is proud to announce the 2025 recipients of our... Read More
Glitter and Grit: Finding Hope Through Art and Cystic Fibrosis
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s post features Dylan... Read More
CF Before Birth: How One Couple Used Modulators for In Utero Treatment to Improve Health Outcomes for Their Child
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Chris and... Read More
Keep Moving Forward: Tips For Staying Positive in The Final 10%
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Lines of Progress: My Journey from Critical Illness to Change-Making Advocacy
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Lines of Connection, Paths to Progress: This CF Awareness Month, It’s Time to #CrossOutCF
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF)... Read More
The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough... Read More
Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape... Read More
