Lines of Progress: My Journey from Critical Illness to Change-Making Advocacy
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
The CF Brother Who Became a CF Scientist
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Lines of Connection, Paths to Progress: This CF Awareness Month, It’s Time to #CrossOutCF
Cystic Fibrosis Awareness Month 2025 is here, and at Emily’s Entourage (EE), we’re celebrating the unwavering spirit of the cystic fibrosis (CF)... Read More
Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition
Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in... Read More
GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a... Read More
EE Rare Disease Week 2021: “Rare is Everywhere”
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to... Read More
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know... Read More
Happy 35th Birthday, Emily!
Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our... Read More
Emily’s Thoughts on “Five Feet Apart”
“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on... Read More
