Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably... קרא עוד
Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those... קרא עוד
In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know... קרא עוד
A couple weeks ago, I had the privilege of speaking at Stanford Medicine X and serving as an ePatient advisor to a new class of ePatients, individuals who are empowered... קרא עוד
Here at Emily’s Entourage we are dedicated to bringing you fresh content full of honesty, passion, and information. With excitement, we present the first in a new blog series, “Faces... קרא עוד
In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their... קרא עוד
Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –... קרא עוד
It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a... קרא עוד
This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but... קרא עוד
Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the... קרא עוד
The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking... קרא עוד
Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White... קרא עוד
After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share... קרא עוד
הפמליה של אמילי שמחה להכריז על מבנה דירקטוריון/וועדה חדש כאשר אנו עוברים מעמותת סטארט-אפ לארגון מפותח יותר בר-קיימא עם השפעה אמיתית וניתנת למדידה. הפמליה של אמילי הייתה... קרא עוד
לפמליה של אמילי מתכננים דברים רבים כדי לעזור לזהות ולחגוג את חודש מאי כחודש המודעות הלאומי לסיסטיק פיברוזיס! בין אם אתה חבר נאמן ב-EE או חדש ב... קרא עוד