A Life That’s Worth Being Seen
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Ashley Ballou-Bonnema,... Lire la suite
The Quiet Weight of Living with CF
During Cystic Fibrosis Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Joey... Lire la suite
Survival is Never a Solo Act
During CF Awareness Month, Emily’s Entourage invites members of the CF community to share their stories. Today’s blog post features Caleigh Haber... Lire la suite
CF, Unseen: A New Perspective for CF Awareness Month
Cystic Fibrosis Awareness (CFA) Month begins today—and at Emily’s Entourage (EE), we’re inviting you to look closer. Because when it comes to... Lire la suite
I Was Rare Among Rare—Until I Wasn’t
During Rare Disease Week, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Lire la suite
#MadeThisWay: How We’re Claiming Rare During Rare Disease Week 2026
At Emily’s Entourage (EE), rare isn’t something we tiptoe around. It isn’t something to soften, explain away, or make smaller so it’s... Lire la suite
Voir plus loin : Imaginer un avenir sans limites pour Emily et le dernier 10%
Every birthday candle Emily lights has always meant more than another year older. It has meant another year here. Another year of... Lire la suite
La course vers la guérison : Rencontrez les 2025 coureurs de l'équipe #TeamEE qui alimentent les percées en matière de FK.
Dans quelques jours, les 22 et 23 novembre 2025, les coureurs de la #TeamEE prendront part au marathon de Philadelphie en l'honneur de... Lire la suite
NACFC 2025 : Principaux éléments à prendre en compte pour la phase finale 10%
Par Chandra Ghose, PhD, Chief Scientific Officer à Emily's Entourage Des rives embrumées de Puget Sound aux salles bourdonnantes de... Lire la suite
La mission en point de mire : Une nuit de clarté et de progrès lors du gala de l'Entourage d'Emily 2025
Le samedi 11 octobre 2025, les sympathisants de l'Entourage d'Emily se sont réunis pour le gala 2025 de l'Entourage d'Emily, “High-Res”, une soirée... Lire la suite
