Emily's Entourage

26 Mar 2019

EE Heads to D.C. for Health Datapalooza 2019

On March 27, Emily’s Entourage (EE) heads to Washington, D.C. to attend Health Datapalooza 2019. Emily, EE co-founder, will participate in the mainstage opening session panel, where she will share...

18 Mar 2019

Emily’s Thoughts on “Five Feet Apart”

“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on the internet. They are asking about the film,...

28 Feb 2019

EE Dares to be Rare: Rare Disease Day 2019

This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily targeted to the general public,...

13 Feb 2019

Fall in LovEE with Emily’s Entourage: Meet EENY 2019 Co-Chairs, Emily & Judah

Our next installment of #FallinLovEE with EE includes a very special announcement: Emily Priebe and Judah Levine, co-founders of the community events company Eesho, will be co-chairing our EENY committee...

07 Jan 2019

Happy 34th Birthday to My Best Friend!

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest blogger is our...

02 Jan 2019

RECAP: The 2018 Evening with Emily’s Entourage

On December 1, 2018 we held our 7th Annual Evening with Emily’s Entourage in East Falls and words cannot express the joy brought on by the remarkable community in attendance....

12 Dec 2018

RECAP: EE Symposium Tackles Key Hurdles and Strategies for Expedited Progress for CF Nonsense Mutations

Emily’s Entourage (EE) held its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, on September 25 at The Wistar Institute in Philadelphia, PA. The singular...

15 Nov 2018

Meet the 2018 Emily’s Entourage Champions!

It’s that time of year again! The Emily’s Entourage 2018 Champions Campaign has been working diligently to reach (and exceed!) their fundraising goal of $1,500 per team by the 7th...

02 Nov 2018

Team EE Gears Up for 25th Philadelphia Half & Full Marathon!

Emily’s Entourage (EE) is lacing up for the 25th Philadelphia Half and Full Marathon on November 17-18, 2018. After four years hosting #TeamEE at the Philadelphia Marathon, EE has reached...

18 Oct 2018

Emily’s Entourage Holds 3rd Annual Cocktail Reception at NACFC

Emily’s Entourage (EE) is hosting its 3rd Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on October 19, 2018 in Denver, CO. Emily and her family...

17 Sep 2018

Devoted to a Cure: Managing CF in Life and Love

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Sigrid Ladores, a Pediatric...

07 Sep 2018

Therapeutic Development for Nonsense Mutations: The Final Frontier of CF

Emily’s Entourage (EE) announces its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, to be held September 24-25 at The Wistar Institute in Philadelphia, PA....

27 Aug 2018

An Extraordinary Legacy: The Inaugural Zack Bassin Memorial Golf Outing

One of the most rewarding benefits of being a member of Emily’s Entourage is the chance to connect with extraordinary individuals from around the globe. Sometimes we connect with people...

18 Jul 2018

Recap: Gen Nxt Presents A Night Out With Emily’s Entourage

On June 13, 2018, Emily’s Entourage took to New York City for the third annual #EENY event: Generation Next Presents A Night Out With Emily’s Entourage. This year, EENY crossed...

11 Jul 2018

EE Awards $660K to Cystic Fibrosis Nonsense Mutations Research

Emily’s Entourage (EE) is thrilled to announce that three research grants have been awarded to an esteemed group of international researchers, amounting to a total of $660,000 to be given...

19 Jun 2018

Behind The Scenes: Why I Teamed Up With EE For A SEEcret Project

Meet guest blogger Elizabeth Phillipson-Weiner, the mastermind behind EE’s “sEEcret project.” For fear of divulging key clues, we will keep the intro brief and somewhat cryptic. Elizabeth hails from Lower...

18 May 2018

Fueled by Hope: Overcoming Challenges as a CF Patient-Scientist

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Miriam Figueira, a 30...

10 May 2018

Dreaming of the Day: A Look Into Life with CF

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Stacy Carmona, a lifelong...

01 May 2018

Fire It Up… May is CF Awareness Month!

May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If you’ve been around the Entourage...

29 Apr 2018

9 Fresh Ways to Help EE this Spring

Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place! Whether you donate in time...

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