Blog

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being... Read More

May is Cystic Fibrosis (CF) Awareness Month, and it is a month we take seriously at Emily’s Entourage (EE). We firmly believe that spreading awareness, not only about the disease,... Read More

The Emily’s Entourage (EE) New York Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the mission to cure Cystic Fibrosis (CF). Nominated in recognition... Read More

On March 27, Emily’s Entourage (EE) heads to Washington, D.C. to attend Health Datapalooza 2019. Emily, EE co-founder, will participate in the mainstage opening session panel, where she will share... Read More

This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily targeted to the general public,... Read More

Our next installment of #FallinLovEE with EE includes a very special announcement: Emily Priebe and Judah Levine, co-founders of the community events company Eesho, will be co-chairing our EENY committee... Read More

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. Today’s guest blogger is our... Read More

On December 1, 2018 we held our 7th Annual Evening with Emily’s Entourage in East Falls and words cannot express the joy brought on by the remarkable community in attendance.... Read More

Emily’s Entourage (EE) held its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, on September 25 at The Wistar Institute in Philadelphia, PA. The singular... Read More

It’s that time of year again! The Emily’s Entourage 2018 Champions Campaign has been working diligently to reach (and exceed!) their fundraising goal of $1,500 per team by the 7th... Read More

Emily’s Entourage (EE) is lacing up for the 25th Philadelphia Half and Full Marathon on November 17-18, 2018. After four years hosting #TeamEE at the Philadelphia Marathon, EE has reached... Read More

Emily’s Entourage (EE) is hosting its 3rd Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on October 19, 2018 in Denver, CO. Emily and her family... Read More

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Sigrid Ladores, a Pediatric... Read More

Emily’s Entourage (EE) announces its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, to be held September 24-25 at The Wistar Institute in Philadelphia, PA.... Read More