Emily's Entourage

29 Mar 2015

Emily’s Entourage Launches New Website

We are thrilled to announce the launch of our new Emily’s Entourage website featuring a brand new “virtual look.” EE is growing up and we are so excited that our website is following suit....

03 Mar 2015

#TBT: A Look Back at Our Third Annual Evening with Emily’s Entourage!

For our third annual “Evening with Emily’s Entourage”, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We were absolutely overwhelmed by the...

28 Jan 2015

Emily’s Entourage Symposium on Nonsense Cystic Fibrosis Mutations

On Jan. 21, Emily’s Entourage hosted a scientific symposium to accelerate research for nonsense mutations of Cystic Fibrosis in partnership with Penn Medicine’s Orphan Disease Center. The event kicked off...

18 Jan 2015

Things I learned in my 20s

Last week, I turned 30. Nobody’s mind was more blown by this milestone than mine. It’s not that I didn’t plan to get here, but 30 just feels so grown...

08 Jan 2015

Happy 30th Birthday Emily!

Hi everyone, Jess from the Entourage here! Today marks a huge milestone birthday for our namesake and inspiration, Emily Kramer-Golinkoff. To help honor the occasion, I wanted to share a...

09 Dec 2014

Third Annual Evening with Emily’s Entourage Silent Auction

We are incredibly excited for our gala event THIS SATURDAY and we wanted to give you just a little taste of what our amazing silent auction has to offer! There...

02 Dec 2014

#GivingTuesday: A Day for Giving Back and Looking Forward

#GivingTuesday is a global day dedicated to giving back by paying it forward. Here at EE, we feel indescribably grateful for an Entourage that exudes the giving spirit and reminds...

18 Nov 2014

Our Philadelphia Marathon Runners: Meet Team EE!

This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people...

06 Nov 2014

EE’s Top 4 Reasons To Get Your Flu Shot Today

Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is...

23 Oct 2014

PharmaTimes Magazine Q+A with Emily

“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now...

21 Sep 2014

Join Team EE in the 2014 Philadelphia Marathon

Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or...

18 Sep 2014

Where in the World is Emily of Emily’s Entourage?

Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and this week was certainly no...

12 Aug 2014

How Emily’s CF Journey Changed My Perspective on Health

We are thrilled to share a blog post from Bea Abbott, a close friend of Emily’s and the entire Kramer-Golinkoff family, as well as a special source of support and...

15 Jul 2014

George Washington University Blog Features Emily’s Entourage TEDMED Great Challenges Discussion

Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important...

27 May 2014

EE Reflects on the Past…and Looks to the Future…

As another successful CF Awareness Month comes to a close, all of us at Emily’s Entourage are taking a moment to reflect on how far we’ve come…… When we pressed...

19 May 2014

Emily’s “Bucket List” of Life Dreams

In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s one thing I’ve learned, it’s that uncertainty is...

30 Apr 2014

May is Cystic Fibrosis Awareness Month: Spread the Word

Emily’s Entourage is proud to participate in recognizing the month of May as National CF Awareness Month. This is a great time for EE to work alongside the CF community...

30 Apr 2014

Emily Answers 24 Questions About Life and CF

Emily’s Entourage is pleased to have this month as an opportunity to shine the light on CF and on our efforts to combat this devastating disease. An awareness month is...

20 Apr 2014

EE Spotlight on: Nickie Boston

Today, we are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. The goal of the “Spotlight Series” is...

08 Apr 2014

THE Emily of Emily’s Entourage Speaks at Tulane University

SPOTTED: THE Emily, of Emily’s Entourage, motivating a room full of 100+ Tulane students to get out and make a difference by choosing a path of action in their lives....

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