Emily's Entourage

25 Jun 2015

#FactFriday

After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share...

18 May 2015

Just For A Day: An Inside Look At Emily’s Life With CF

Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also...

10 May 2015

A Mother’s Perspective: Celebrating Mother’s Day with Emily’s Mom

Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some...

07 May 2015

EE Board Member Spotlight: Heather Braver

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

05 May 2015

EE Board Member Spotlight: Rachael Packer

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

04 May 2015

Emily’s Entourage Embraces New Leadership

Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was...

29 Apr 2015

Make Some Noise: May is Cystic Fibrosis Awareness Month!

Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to...

13 Apr 2015

EE’s Big Easy Bash: Tulane Students Fighting for a Cure

Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so...

29 Mar 2015

Emily’s Entourage Launches New Website

We are thrilled to announce the launch of our new Emily’s Entourage website featuring a brand new “virtual look.” EE is growing up and we are so excited that our website is following suit....

03 Mar 2015

#TBT: A Look Back at Our Third Annual Evening with Emily’s Entourage!

For our third annual “Evening with Emily’s Entourage”, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We were absolutely overwhelmed by the...

28 Jan 2015

Emily’s Entourage Symposium on Nonsense Cystic Fibrosis Mutations

On Jan. 21, Emily’s Entourage hosted a scientific symposium to accelerate research for nonsense mutations of Cystic Fibrosis in partnership with Penn Medicine’s Orphan Disease Center. The event kicked off...

18 Jan 2015

Things I learned in my 20s

Last week, I turned 30. Nobody’s mind was more blown by this milestone than mine. It’s not that I didn’t plan to get here, but 30 just feels so grown...

08 Jan 2015

Happy 30th Birthday Emily!

Hi everyone, Jess from the Entourage here! Today marks a huge milestone birthday for our namesake and inspiration, Emily Kramer-Golinkoff. To help honor the occasion, I wanted to share a...

09 Dec 2014

Third Annual Evening with Emily’s Entourage Silent Auction

We are incredibly excited for our gala event THIS SATURDAY and we wanted to give you just a little taste of what our amazing silent auction has to offer! There...

02 Dec 2014

#GivingTuesday: A Day for Giving Back and Looking Forward

#GivingTuesday is a global day dedicated to giving back by paying it forward. Here at EE, we feel indescribably grateful for an Entourage that exudes the giving spirit and reminds...

18 Nov 2014

Our Philadelphia Marathon Runners: Meet Team EE!

This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people...

06 Nov 2014

EE’s Top 4 Reasons To Get Your Flu Shot Today

Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is...

23 Oct 2014

PharmaTimes Magazine Q+A with Emily

“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now...

21 Sep 2014

Join Team EE in the 2014 Philadelphia Marathon

Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or...

18 Sep 2014

Where in the World is Emily of Emily’s Entourage?

Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and this week was certainly no...

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