Emily's Entourage

20 Feb 2020

North American CF Conference 2019: Advances for Nonsense Mutations of CF

Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually by the Cystic Fibrosis Foundation...

13 Feb 2020

CommunitEE Partners: Sweet Stuff Gourmet Candy

Since its founding in 2011, Emily’s Entourage (EE) is grateful to have developed meaningful relationships with our local community. These relationships have transformed into partnerships that have been integral to...

07 Jan 2020

Happy 35th Birthday, Emily!

Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #35for35 campaign and birthday celebration for our dear...

21 Dec 2019

A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

Can we just say…WOW. On Saturday December 7, 2019, Emily’s Entourage (EE) held its 8th Annual Evening with Emily’s Entourage Gala at Moulin at Sherman Mills in East Falls, PA....

22 Nov 2019

Humans of EE: Meet 2019 Philly Gala Honorary Chairs, Kami and Josh Verne

On Fridays, Emily’s Entourage (EE) likes to highlight the remarkable stories and diverse perspectives that make up our expansive, incredible Entourage in the “Humans of EE” series, a riff on...

01 Nov 2019

EE Holds 4th Annual Cocktail Reception at NACFC in Nashville

Emily’s Entourage (EE) is excited to be hosting its 4th Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on November 1, 2019. Emily and her family...

25 Oct 2019

Race for a Cure: Record TeamEE Runners for 26th Philadelphia Marathon Weekend

Emily’s Entourage (EE) is humbled to have such a large support system from the surrounding community. Over the years, countless members of the Entourage have taken matters into their own...

23 Aug 2019

Training for a Cure: CF Researcher Raises Funds for EE

Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations of Cystic Fibrosis (CF). In the next year,...

07 Jun 2019

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

On May 4, 2019, Emily’s Entourage (EE) stormed Manhattan yet again with the 4th Annual EENY fundraiser. The event was breathtaking (in the best possible way!). The theme was Ultra...

04 Jun 2019

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Emily’s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day...

31 May 2019

Address the Unseen Scars: Mental Health and Cystic Fibrosis

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

29 May 2019

Emily Speaks at Translate Bio’s CF Awareness Month Event

On May 29, Emily’s Entourage (EE) attended Translate Bio’s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided opening remarks to launch the day’s events as...

24 May 2019

Appreciate Every Single Smile: Navigating Life with CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

20 May 2019

EE Awards Over $400,000 to Cystic Fibrosis Research

Emily’s Entourage (EE) is thrilled to announce that two new research grants and one stimulus grant have been awarded to a group of highly respected researchers, amounting to a total...

17 May 2019

The Luckiest Man Alive: Loving a Woman with CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage community to contribute their unique voices to our blog. In honor of May being Cystic...

10 May 2019

Finding Hope in Loss: Becoming a CF Mother

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

03 May 2019

The Flotation Device I Cling To: Living with Nonsense Mutations of CF

From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog. In honor of May being...

01 May 2019

Let’s Get Noisy…May Is CF Awareness Month!

May is Cystic Fibrosis (CF) Awareness Month, and it is a month we take seriously at Emily’s Entourage (EE). We firmly believe that spreading awareness, not only about the disease,...

23 Apr 2019

The 4th Annual EENY: Full Artist Lineup

The 4th Annual EENY: ULTRA VIOLET in NYC is just around the corner on May 4, and Emily’s Entourage (EE) is absolutely thrilled to announce the full lineup of the...

17 Apr 2019

Meet the 2019 EENY Champions!

The Emily’s Entourage (EE) New York Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the mission to cure Cystic Fibrosis (CF). Nominated in recognition...

Blog

North American CF Conference 2019: Advances for Nonsense Mutations of CF

CommunitEE Partners: Sweet Stuff Gourmet Candy

Happy 35th Birthday, Emily!

A Foundation of the Future: The 8th Annual “Evening with Emily’s Entourage” Gala

Humans of EE: Meet 2019 Philly Gala Honorary Chairs, Kami and Josh Verne

EE Holds 4th Annual Cocktail Reception at NACFC in Nashville

Race for a Cure: Record TeamEE Runners for 26th Philadelphia Marathon Weekend

Training for a Cure: CF Researcher Raises Funds for EE

Ultra Violet Beams of Potential: Recap of the 4th Annual EENY

Emily Speaks at the 2019 BIO International Convention in Philadelphia

Address the Unseen Scars: Mental Health and Cystic Fibrosis

Emily Speaks at Translate Bio’s CF Awareness Month Event

Appreciate Every Single Smile: Navigating Life with CF

EE Awards Over $400,000 to Cystic Fibrosis Research

The Luckiest Man Alive: Loving a Woman with CF

Finding Hope in Loss: Becoming a CF Mother

The Flotation Device I Cling To: Living with Nonsense Mutations of CF

Let’s Get Noisy…May Is CF Awareness Month!

The 4th Annual EENY: Full Artist Lineup

Meet the 2019 EENY Champions!

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