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Fast Breakthroughs for Cystic Fibrosis

Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.

GRANTS WE FUND

EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.

LEARN MORE

CLINICAL TRIALS

Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient. 

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PATIENT DATABASE

Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.

JOIN NOW

Recent Blog Posts

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 Mar 2025
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging....
Read More

Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

19 Feb 2025
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many...
Read More

What’s the best that could happen?

07 Jan 2025
By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone! And Happy birthday...
Read More

Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

04 Dec 2024
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and heart that fills...
Read More
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Approach
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • 2025 EE Gala
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Awards
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
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    • Sign Up for Updates
  • Blog
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