Top 5 Reasons Your Support Is Making EE Unstoppable
Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support... Read More
JOIN THE TEAM TO CURE CF
Emily’s Entourage is about joining together and leveraging the power of community to make a difference in the fight against Cystic Fibrosis. We’re on a mission to save our sister, daughter, granddaughter, friend and the 70,000 other people with CF – and you can help.
CNN Features
Emily's Entourage
CNN Health talks to Emily and Liza about raising millions for a Cystic Fibrosis breakthrough in the fight for Emily’s life.
AOL Features
Emily's Entourage
Learn more about how Emily is using the power of social media to find her own cure in this feature by AOL.
EE Made Rare
Revolution's Cover
Rare Revolution Magazine featured Emily’s Entourage as their cover story for the March issue.
Recent Blog Posts
Ready or Not… It’s CF Awareness Month
It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are... Read More
A Glimpse Into Life With Chronic Illness
Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in... Read More
Personalized Medicine Coalition Congressional Briefing & Lobbying
Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week... Read More