Listening Isn’t Nonsense: Becoming Your Own Patient Advocate
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
The Line Between: CF Community Testimonials
Hear stories from members of the
CF community on which side they
fall on—improving or declining health.
Patient Registry Collaboration with Biotech Company
EE launched a pilot collaboration
with Translate Bio to use its
patient registry for trial outreach.
EE Awards $790K to Four CF Research Projects
New projects have been awarded as part
of EE’s fifth round of grants, all focused
on accelerating CF breakthroughs.
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The Emily’s Entourage (EE)... Read More
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More