EE Rare Disease Week 2021: “Rare is Everywhere”
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to raise awareness for... Read More
GRANTS WE FUND
EE has awarded over $4.8 million to multi-disciplinary teams around the world.
PATIENT REGISTRY
EE maintains a patient registry of individuals with nonsense mutations of CF in an effort to inform them about relevant research, clinical advances, and drug trials.
“Magic Line” Campaign Exceeds Goals, Takes EE to New Heights
With the Covid pandemic putting a halt to in-person fundraising events in 2020, Emily’s Entourage (EE) sought to reinvent its annual campaign in true EE... Read More
Emily’s Entourage Debuts “The Magic Line,” Launches Push to the Final Summit of CF
Emily’s Entourage (EE) has never shied away from a challenge. That is to be expected for an organization that is speeding life-saving research and drug... Read More
The Gift of Aging: Happy 36th Birthday, Emily!
Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #36for36... Read More
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