EE Launches “Dare to be Rare” Campaign for Rare Disease Week
Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical awareness for rare... Read More
Emily’s Entourage is the only organization singularly focused on speeding lifesaving breakthroughs and a cure for people with nonsense mutations of cystic fibrosis.
EE has awarded over $4.8 million to multi-disciplinary teams around the world.
EE maintains a patient registry of individuals with nonsense mutations of CF in an effort to inform them about relevant research, clinical advances, and drug trials.