Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The Emily’s Entourage (EE)... Read More
The Magic Line: Drawing a Future Without CF
Join EE (virtually!) for the 6th annual
EENY on May 19, 2021. Stay tuned
for exciting announcements!
Patient Registry Collaboration with Biotech Company
EE launched a pilot collaboration
with Translate Bio to use its
patient registry for trial outreach.
EE Awards $790K to Four CF Research Projects
New projects have been awarded as part
of EE’s fifth round of grants, all focused
on accelerating CF breakthroughs.
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
The Only Thing You Have Control Over: Appreciating CF Caregiving
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
English 
Español