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https://www.emilysentourage.org/wp-content/uploads/MAGIC-LINE_FC_Web_12.5.20.mp4
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Fast Breakthroughs for Cystic Fibrosis

Emily’s Entourage is the only organization singularly focused on speeding research for new treatments and a cure for people with nonsense mutations of Cystic Fibrosis. Since 2011, the organization has raised millions of dollars to fund critical research and apply an entrepreneurial approach to accelerating the development of life-saving therapeutics.

The Line Between: CF Community Testimonials

Hear stories from members of the
CF community on which side they
fall on—improving or declining health.

WATCH HERE

Patient Registry Collaboration with Biotech Company

EE launched a pilot collaboration
with Translate Bio to use its 
patient registry for trial outreach. 

READ MORE

EE Awards $790K to Four CF Research Projects

New projects have been awarded as part
of EE’s fifth round of grants, all focused
on accelerating CF breakthroughs.

READ MORE

Recent Blog Posts

The Only Thing You Have Control Over: Appreciating CF Caregiving

04 May 2020
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog....
Read More

All Hands On Deck: It is Cystic Fibrosis Awareness Month

01 May 2020
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May...
Read More

Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak

14 Mar 2020
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic...
Read More

North American CF Conference 2019: Advances for Nonsense Mutations of CF

20 Feb 2020
Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually...
Read More
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Emily’s Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • Our Mission
    • Our Approach
    • Our Impact
      ▼
      • 2019 Impact Report
    • Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Publications
    • Patient Registry: CF Nonsense Mutation
    • For Researchers
      ▼
      • Research Resources
      • Research Inquiries
      • Funding Opportunities
  • Events
    ▼
    • Signature Events
      ▼
      • 2020 Year End Campaign
      • EENY: LIVE! Virtual Benefit
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
      ▼
      • EE Launches First Virtual Benefit
      • Spirovant Acquisition
      • FDA Approval of Trikafta
    • Awards
    • Videos
  • Take action
    ▼
    • Donate to Emily’s Entourage
      ▼
      • Donate Now
      • Other Ways to Give
    • Get Involved
      ▼
      • Sign Up for Updates
    • Fundraise
      ▼
      • Start Your Fundraiser
      • What You Can Do
    • Shop EE
  • Blog
  • Contact Us

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