The Only Thing You Have Control Over: Appreciating CF Caregiving
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
The Line Between: CF Community Testimonials
Hear stories from members of the
CF community on which side they
fall on—improving or declining health.
Patient Registry Collaboration with Biotech Company
EE launched a pilot collaboration
with Translate Bio to use its
patient registry for trial outreach.
EE Awards $790K to Four CF Research Projects
New projects have been awarded as part
of EE’s fifth round of grants, all focused
on accelerating CF breakthroughs.
All Hands On Deck: It is Cystic Fibrosis Awareness Month
While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know for sure. May... Read More
Staying Safe and Staying Sane: Tips From an Infection Control Vet During the Coronavirus Outbreak
On today’s blog, Emily’s Entourage Co-Founder, Emily Kramer-Golinkoff, draws on her lifetime of experience taking preventive measures to avoid germs as a result of Cystic... Read More
North American CF Conference 2019: Advances for Nonsense Mutations of CF
Emily’s Entourage (EE) attended the North American Cystic Fibrosis Conference (NACFC) in Nashville, TN from October 31 to November 2, 2019. This conference, held annually... Read More