EE Launches “Dare to be Rare” Campaign for Rare Disease Week
Rare Disease Week, which launches today ahead of Rare Disease Day on February 28, is a worldwide campaign to bring about critical awareness for rare... Read More
GRANTS WE FUND
EE has awarded over $4.8 million to multi-disciplinary teams around the world.
PATIENT REGISTRY
EE maintains a patient registry of individuals with nonsense mutations of CF in an effort to inform them about relevant research, clinical advances, and drug trials.
Q&A with EE’s First-Ever Chief Scientific Officer, Dr. Chandra Ghose
We are so excited to announce that Chandra Ghose, PhD, has joined Emily’s Entourage (EE) as our first-ever Chief Scientific Officer. We caught up with... Read More
Harnessing Our Superpower
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend If you know Emily, then you know that her superpowers are many.... Read More
“The Power of 10” Drive-in Gala Celebrates Historic Milestone For Emily’s Entourage
Everything (and we mean everything) about the 10th annual Evening with Emily’s Entourage gala, held on Saturday, Dec. 4, 2021, was remarkable. First and foremost,... Read More
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