Director of Corporate Partnerships and Institutional Giving

Emily’s Entourage is seeking a full-time Director of Corporate Partnerships and Institutional Giving to spearhead partnerships in support of EE’s urgent mission to speed lifesaving breakthroughs and a cure for the final 10% of the CF community that does not currently benefit from mutation-targeted therapies.

La posición

This role will vitally contribute to the organization’s growth and drive the achievement of ambitious revenue goals. The ideal candidate will be a skilled relationship developer and partnership manager, a driven and goal-oriented fundraiser, and a strategic thinker.

EE has built a robust corporate partnership and foundation grant program that currently generates approximately 25% of the organization’s annual revenue. The funds raised through this program drive EE’s aggressive investment in research to speed therapeutic development for the final 10%. EE’s current portfolio of corporate and foundation supporters includes more than 40 life sciences, medical device, and industry partners who support EE through annual sponsorship, sponsorship of special events or digital awareness campaigns, or foundation grants. As the organization’s work continues to advance, there is immense opportunity to strengthen and form new strategic partnerships and develop innovative revenue streams to drive EE’s critical mission.

The Director of Corporate Partnerships and Institutional Giving will join a growing team that includes two co-founders, a Director of Operations, Director of Fundraising and Special Events, Manager of Marketing and Communications, Chief Scientific Officer, Executive Assistant (currently recruiting for this role), and the Database Manager. The Director of Corporate Partnerships and Institutional Giving will report to the Director of Operations.

La organización

Emily’s Entourage accelerates research and drug development for the final 10% of people with cystic fibrosis (CF) that do not benefit from mutation-targeted therapies, including those with nonsense mutations. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.

EE is an innovative 501(c)3 that speeds breakthroughs and a cure for the final 10% of people with CF that do not benefit from current mutation-targeted therapies, including those with nonsense mutations. Founded by Emily Kramer-Golinkoff with family and friends, EE is fueled by powerful communities, small and large, in person and virtual, that have rallied together, raising more than $11M dollars since 2011 to drive high-impact research and drug development.

By providing critical leadership and coordination, EE advances high-impact research, facilitates multi-stakeholder collaboration and information exchange, and enables targeted, expedited clinical trial recruitment to speed breakthroughs for the final 10% of the CF community. This is done through several programs, including: research grants, venture philanthropy, a patient registry and clinical trial matchmaking program, and patient advocacy and education. To date, EE has funded 31 research grants, secured over $42.8M in follow-on funding, launched a now- acquired CF gene therapy company, developed a patient registry and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development.

While the urgency of the organization is inspired by Emily, the work of EE gives impetus to advances that can benefit not only patients with CF, but also millions of people with genetic diseases, as well as those combating antibiotic-resistant infections for whom there are no existing treatments.

The work of EE has been featured in the New York Times, STAT, CNN, TheSkimm, People, and more. Emily was named a “Champion of Change” for President Obama’s Precision Medicine Initiative and is the recipient of the 2016 Global Genes Rare Champion of Hope for Advocacy Award and the 2020 Philadelphia Magazine Luminary Award.

Responsabilidades

Asociación Corporativa

• Manage EE’s robust corporate partnership program and explore new ways to leverage
  corporate relationships to expand funding and strategic opportunities for EE
• Develop, in coordination with co-founders and leadership, and meet or exceed annual and event-specific revenue goals and targets
  Construir y mantener relaciones sólidas con socios existentes, además de investigar y desarrollar nuevas relaciones para expandir la cartera de socios y objetivos corporativos de EE.
• Develop, manage, and execute cohesive strategic engagement plans for corporate partners and serve as the main point of contact
• Cree propuestas y materiales personalizados y atractivos de patrocinio y asociación anualmente, y relacionados con eventos y campañas específicos.
• Solicit sponsorships, track, and follow up as needed
• Administrar a los donantes corporativos y asegurarse de que los beneficios del patrocinio se cumplan en conformidad
• Plan and maintain sponsorship trackers and schedule for solicitation, benefit fulfillment, etc.

Relaciones con fundaciones / subvenciones

• Mantener, construir y desarrollar relaciones con fundaciones y socios que otorgan subvenciones.
• Prospectar e investigar para conocer los posibles donantes y crear más oportunidades de apoyo.
• Write and submit all grants, including compiling budget, scientific, and organizational components with collaboration from EE staff and stakeholders as needed
• Plan and maintain an annual grants schedule
• Garantizar la presentación de informes y el cumplimiento de las subvenciones otorgadas de manera oportuna.
  

Eventos especiales

• Strategize and coordinate, in collaboration with the Director of Fundraising and Special Events, and co-founders and leadership, on the fundraising, sponsorship, and any other event-specific revenue generation for major fundraising events
• Work with the Director of Fundraising and Special Events to ensure all sponsorship benefits are fulfilled, including planning sponsor cocktail hours or virtual receptions, communicating seamlessly to sponsors about benefits and deliverables, and acting as a sponsor ambassador and steward at events
• Work with the Manager of Marketing and Communications to execute sponsor recognition and social media benefits and to collect, analyze, and report on metrics and sponsorship reach post-event
  

Administrativo / Operaciones

• Colaborar con los cofundadores y el Director de Operaciones para establecer y realizar un seguimiento regular de las prioridades estratégicas anuales en lo que respecta a asociaciones y subvenciones.
• Apoyar al Director de Operaciones y al Gerente de Base de Datos para garantizar la integridad de la base de datos de los donantes y los informes / análisis según sea necesario
• Otras tareas asignadas

Cualificaciones y habilidades

Calificaciones

• Licenciatura en un campo relevante
• Seven to ten years professional fundraising experience including corporate partnership, sponsorship, foundation relations or related field
• Se prefiere la experiencia previa en organizaciones de salud, pero no se requiere
• Habilidades orales, escritas e interpersonales excepcionales. Debe poder escribir y hablar de manera convincente sobre nuestra organización, misión y objetivos, y adaptar de manera efectiva los mensajes a las diferentes partes interesadas.
• Éxito demostrado en la gestión de relaciones
• Capacidad para comunicarse y colaborar de manera constante y positiva con colegas, líderes de la organización y socios externos
• Capacidad para gestionar múltiples prioridades en competencia y para entregar con éxito a tiempo y dentro del presupuesto en un entorno dinámico y de ritmo rápido.
• Ability to develop an understanding of science and research related to CF and the final 10% in order to comfortably and appropriately represent EE in external stakeholder meetings, speaking engagements, or opportunities to share information about EE with the community.

Remuneración y prestaciones

Emily’s Entourage offers a competitive salary based on experience, plus a generous PTO plan, health, and retirement benefits.

Instrucciones de aplicación

Emily’s Entourage has retained Higher Talent Executive Search to manage the recruitment process. Candidates will complete comprehensive reference and background checks. Interested candidates should direct inquiries to: Laurie Sloss at ls@highertalentinc.com, or call 301-395- 9714.

Emily’s Entourage is proud to be an equal opportunity employer. All applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, or veteran status.

Emily’s Entourage lists all open positions on the careers page.