I Allowed Myself To Be Vulnerable and Was Humbled by My Community’s Immense Response
By Jennie, mother of a child with cystic fibrosis As we head into Thanksgiving, I’m looking forward to some much-needed decompression and... Read More
How It Started: A Look Back at the Launch of EE’s Champions Program
By Nicholas Dinges, board member, Emily’s Entourage I’ve known Emily for 25 years now (we went to middle school, high school, and... Read More
Let’s Be the Light for the Final 10% of People With CF
By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he... Read More
A Lasting Legacy: The 3rd Annual Zack Bassin Memorial Golf Outing
On Friday, Aug. 27, 2021, those who loved Zack Bassin gathered to play a round of 18 holes — and it was... Read More
Stolen Dreams and Freedom: An Adult With CF’s Journey to a Double-Lung Transplant
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Racing Against a Ticking Time Bomb: A Father’s Plea to Speed Breakthroughs for His Child With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Straddling the Line Between the Sick and Well Worlds: A Mother Shares Her Late Daughter’s 25-Year-Long Battle With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Recap: FDA Listening Session for the Final 10% of People With Cystic Fibrosis, Hosted by Emily’s Entourage
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Drawing a Future Without CF: Recap of EENY’s 2021 Virtual Event
With the world is still in the throes of a global pandemic and in-person gatherings, while starting to take hold, still not... Read More
Living My Dream — With CF
We are honored to share voices from the Cystic Fibrosis (CF) community as part of our blog series for CF Awareness Month.... Read More
