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Blog

May is Cystic Fibrosis Awareness Month: Let’s #CrossOutCF for 100% of the CF Community

19 Apr 2023
May is an important time of the year for us at Emily’s Entourage (EE). It marks Cystic Fibrosis (CF) Awareness Month, a...
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EE Grant Recipient Dr. David Pride Identifies 10+ MRSA Phages 

12 Apr 2023
At Emily’s Entourage (EE), we realize that what drives disease progression and mortality in people with cystic fibrosis (CF) — and what...
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EE Launches “ExtraordinRARE” Campaign for Rare Disease Week

26 Feb 2023
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day...
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Emily’s Entourage (EE) Hosted 5th Annual Cocktail Reception at NACFC 2022

23 Jan 2023
Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate...
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Small Steps: Keep Birthdays Coming for Everyone With CF

06 Jan 2023
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Being a parent to two young children means that...
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Laces Up, Team EE! 22 Runners Raced Towards CF Cures in the Philadelphia Marathon

12 Dec 2022
We learned a long time ago that the people who power Emily’s Entourage (EE) are the strongest and most tenacious group of...
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Flying High at the 2022 Evening With Emily’s Entourage “Flight of the Monarch” Gala

19 Oct 2022
Talk about a night to remember! On Thursday, Oct. 13, 2022, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala,...
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Exceptional in Every Way: Raising a Son Who is the Rarest of the Rare

27 May 2022
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is...
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Battling Two Deadly Diseases: My Crusade to Lower the Colon Cancer Screening Age

24 May 2022
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is...
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My Experience with Phage Therapy: 3 Years Later

20 May 2022
During CF Awareness Month, Emily’s Entourage (EE) invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post...
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Emily’s Entourage
PO Box 71
Merion Station, PA 19066

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Emily's Entourage
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  • Home
  • Emily’s Story
  • About Us
    ▼
    • About Emily’s Entourage
    • Our Impact
      ▼
      • 2022-2023 Impact Report
      • 2021 Impact Report
      • 2020 Impact Report
      • 2019 Impact Report
    • About Cystic Fibrosis
    • Meet Our Leadership
      ▼
      • Scientific Advisory Board
      • Board of Directors
      • Leadership Team
    • Partner Organizations
  • Research
    ▼
    • Areas of Focus
    • Awarded Grants
    • Funding Opportunities
      ▼
      • Venture Philanthropy Investments
      • Collaborative Grants
      • Translational Grants
    • CF Clinical Trial Connect
    • Clinical Trial Matchmaking Program
    • The Final 10% Survey
    • Publications
    • For Researchers
      ▼
      • Research Inquiries
      • Research Resources
  • Events
    ▼
    • Events & Activities
  • Press & Media
    ▼
    • EE in the News
    • Press Releases
    • Videos
  • Take action
    ▼
    • Donate
    • Get Involved
    • Join CF Clinical Trial Connect
    • Shop EE
    • Sign Up for Updates
  • Blog
  • Contact
  • Donate
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