Blog

On a radiant Saturday evening, October 5, 2024, the Mann Center for Performing Arts in Philadelphia became a beacon of hope and unity as Emily’s Entourage (EE) hosted its annual... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Mel Kotlyar, an adult with... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Sophie Pierce, an adult with... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Rebecca Mueller, an adult with... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Noah Singer, parent of a... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Tré LaRosa, an adult with... Read More

May is Cystic Fibrosis (CF) Awareness Month, a time for the community to band together to spread awareness, advocate, share personal stories, and unite behind the mission of accelerating breakthroughs... Read More

Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 29, 2024. This week is a... Read More

by Chandra Ghose, PhD, EE’s Chief Scientific Officer In December 2023, Emily’s Entourage (EE) hosted a scientific symposium, The Promise of Gene-Based Therapies for Cystic Fibrosis (CF), at Quorum at... Read More

In December 2021, I was sitting down to lunch with my husband and glued to my phone. I wasn’t scrolling Instagram or TikTok. Instead, I was furiously searching Google Scholar... Read More

By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Hi there, Jess here! I’m back again to wish Emily the happiest of birthdays and to share... Read More

We are truly seeing stars! On Saturday, October 14, 2023, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “True North,” and raised a staggering $1.3M — more... Read More

Pulmonary bacterial infections, specifically drug-resistant infections, drive disease progression and mortality in people with cystic fibrosis (CF). Among the worst are non-tuberculosis mycobacterium (NTM) infections, which are often resistant to... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Ela Castillo, an adult with... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Gareth Davies, the parent of a child... Read More

Last month, Emily’s Entourage’s (EE) Chief Scientific Officer, Chandra Ghose, PhD, traveled to attend the 18th European Cystic Fibrosis Society (ECFS) Basic Science Conference, held from March 29 to April... Read More

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Drew Dotson, an adult with CF. “My... Read More