Emily's Entourage

31 Oct 2023

Three New Phages Developed for Nontuberculosis Mycobacteria in People with CF

Pulmonary bacterial infections, specifically drug-resistant infections, drive disease progression and mortality in people with cystic fibrosis (CF). Among the worst are non-tuberculosis mycobacterium (NTM) infections, which are often resistant to...

23 Oct 2023

Unpacking the Promise of Gene-Based Therapies: Insights from EE’s Gene Therapy Town Hall

On August 22, 2023, Emily’s Entourage (EE) hosted a virtual town hall meeting that delved into the exciting world of gene-based therapies for cystic fibrosis (CF). This virtual event aimed...

16 May 2023

My Journey to Diagnosis as Someone Who Doesn’t Look Like the “Typical” CF Patient

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Ela Castillo, an adult with...

11 May 2023

Our Rare Journey within the 10%

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Gareth Davies, the parent of a child...

26 Apr 2023

EE Attends the 18th ECFS Basic Science Conference

Last month, Emily’s Entourage’s (EE) Chief Scientific Officer, Chandra Ghose, PhD, traveled to attend the 18th European Cystic Fibrosis Society (ECFS) Basic Science Conference, held from March 29 to April...

25 Apr 2023

A New Lease on Life: What Will You Do With It?

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Drew Dotson, an adult with CF. “My...

19 Apr 2023

May is Cystic Fibrosis Awareness Month: Let’s #CrossOutCF for 100% of the CF Community

May is an important time of the year for us at Emily’s Entourage (EE). It marks Cystic Fibrosis (CF) Awareness Month, a time for the community to band together to...

12 Apr 2023

EE Grant Recipient Dr. David Pride Identifies 10+ MRSA Phages

At Emily’s Entourage (EE), we realize that what drives disease progression and mortality in people with cystic fibrosis (CF) — and what threatens their ability to wait for transformative therapies...

26 Feb 2023

EE Launches “ExtraordinRARE” Campaign for Rare Disease Week

Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 28. It is a time for...

23 Jan 2023

Emily’s Entourage (EE) Hosted 5th Annual Cocktail Reception at NACFC 2022

Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate EE’s achievements to date, recognize and honor the...

06 Jan 2023

Small Steps: Keep Birthdays Coming for Everyone With CF

By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Being a parent to two young children means that each day I complete approximately 750 small tasks,...

12 Dec 2022

Laces Up, Team EE! 22 Runners Raced Towards CF Cures in the Philadelphia Marathon

We learned a long time ago that the people who power Emily’s Entourage (EE) are the strongest and most tenacious group of humans in the entire world. Nowhere is that...

19 Oct 2022

Flying High at the 2022 Evening With Emily’s Entourage “Flight of the Monarch” Gala

Talk about a night to remember! On Thursday, Oct. 13, 2022, Emily’s Entourage (EE) held our annual Evening with Emily’s Entourage gala, “The Flight of the Monarch,” at The Mann...

27 May 2022

Exceptional in Every Way: Raising a Son Who is the Rarest of the Rare

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Jason DeMott, the parent of a child...

24 May 2022

Battling Two Deadly Diseases: My Crusade to Lower the Colon Cancer Screening Age

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Anna Payne, an adult with CF. Did...

20 May 2022

My Experience with Phage Therapy: 3 Years Later

During CF Awareness Month, Emily’s Entourage (EE) invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Ella Balasa, a patient advocate and...

13 May 2022

A Life Without Worry

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Abhijit Tirumala, an adult with CF. Even...

06 May 2022

My Brave Resilient Sister: A Sibling Perspective of CF

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post is by Emily Wasserman, a sibling of an adult...

01 May 2022

CF Awareness Month: Putting an End to CF Once and For All

May is Cystic Fibrosis (CF) Awareness Month, a time for the entire CF community to come together to advocate, spread awareness, share personal stories, and unite behind the mission of...

28 Apr 2022

Webinar Recap: Key Findings From EE’s “Final 10%” Survey

On April 6, 2022, Emily’s Entourage (EE) presented an informational webinar to share the findings of its inaugural global survey on the health and perspectives of people with cystic fibrosis...

Blog