Emily's Entourage

07 Dez 2015

Porque é que gostamos de balões de ar quente?

Ever since the very beginning of Emily’s Entourage- actually, even before there was an Entourage, hot air balloons have been a special symbol for the Kramer-Golinkoff family. You have probably...

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16 Nov 2015

O "encontro de vontades" da EE impulsiona novas abordagens arrojadas à terapêutica da FC

Emily’s Entourage convened a Key Opinion Leaders Meeting in Philadelphia on September 9, bringing together world-class scientists to brainstorm new, out-of-the-box approaches to treat Emily’s rare CF mutation and those...

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14 Nov 2015

Tão Verdadeiro / Tão Falso: Um guia lúdico para acabar com os mitos da Gala "Evening with Emily's Entourage

In case you haven’t noticed, we’re pretty excited that there is now less than one month until our annual Evening with Emily’s Entourage Gala on Saturday, December 5th! We know...

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26 Out 2015

9 lições de medicina de Stanford que mudaram a sua vida X

A couple weeks ago, I had the privilege of speaking at Stanford Medicine X and serving as an ePatient advisor to a new class of ePatients, individuals who are empowered...

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22 Out 2015

Rostos da FC: um aniversário especial

Here at Emily’s Entourage we are dedicated to bringing you fresh content full of honesty, passion, and information. With excitement, we present the first in a new blog series, “Faces...

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13 Out 2015

A Emily's Entourage vai assumir a Maratona de Filadélfia de 2015 pelo segundo ano

In the cystic fibrosis (“CF”) community, the simple, often involuntary, act of taking a breath resonates deeply. Among other symptoms, CF patients deal with the buildup of mucus in their...

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05 Out 2015

Vote na Emily para Herói da Saúde de Filadélfia

Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –...

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30 Set 2015

Anúncio da nossa campanha Emily's Entourage Champions!

It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a...

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21 Set 2015

Emily regressa a Stanford Medicine X como oradora e conselheira

This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but...

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30 Ago 2015

Um poema inspirado

Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the...

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27 Jul 2015

6 dicas para se levantar depois de ser derrubado

The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking...

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13 Jul 2015

Emily distinguida como "Campeã da Mudança" pela Casa Branca

Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White...

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25 Jun 2015

#FactFriday

After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share...

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18 de maio de 2015

Só por um dia: Um olhar interno sobre a vida de Emily com FC

Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also...

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10 de maio de 2015

A perspetiva de uma mãe: Celebrar o Dia da Mãe com a mãe da Emily

Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some...

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07 de maio de 2015

Membro do Conselho de Administração da EE em destaque: Heather Braver

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

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05 de maio de 2015

Membro do Conselho de Administração da EE em destaque: Rachael Packer

We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know...

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04 de maio de 2015

A comitiva de Emily abraça uma nova liderança

Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was...

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29 Abr 2015

Faça barulho: maio é o Mês da Consciencialização para a Fibrose Quística!

Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to...

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13 Abr 2015

Grande festa fácil da EE: Estudantes de Tulane lutam por uma cura

Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so...

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Blogue

Porque é que gostamos de balões de ar quente?

O "encontro de vontades" da EE impulsiona novas abordagens arrojadas à terapêutica da FC

Tão Verdadeiro / Tão Falso: Um guia lúdico para acabar com os mitos da Gala "Evening with Emily's Entourage

9 lições de medicina de Stanford que mudaram a sua vida X

Rostos da FC: um aniversário especial

A Emily's Entourage vai assumir a Maratona de Filadélfia de 2015 pelo segundo ano

Vote na Emily para Herói da Saúde de Filadélfia

Anúncio da nossa campanha Emily's Entourage Champions!

Emily regressa a Stanford Medicine X como oradora e conselheira

Um poema inspirado

6 dicas para se levantar depois de ser derrubado

Emily distinguida como "Campeã da Mudança" pela Casa Branca

#FactFriday

Só por um dia: Um olhar interno sobre a vida de Emily com FC

A perspetiva de uma mãe: Celebrar o Dia da Mãe com a mãe da Emily

Membro do Conselho de Administração da EE em destaque: Heather Braver

Membro do Conselho de Administração da EE em destaque: Rachael Packer

A comitiva de Emily abraça uma nova liderança

Faça barulho: maio é o Mês da Consciencialização para a Fibrose Quística!

Grande festa fácil da EE: Estudantes de Tulane lutam por uma cura

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